Sunday, October 11, 2009

Barren B*tches Book Brigade: "It Sucked and then I Cried" by Heather B. Armstrong (Dooce)

It's time once again for another session with the Barren B*tches Book Brigade, the ALI (adoption/loss/infertility) community's virtual book club, organized by Melissa at Stirrup Queens. Participants read the same book and each submit a question to Melissa, who compiles & circulates a list of all the questions. We then answer at least three of them in our blog, and post at or around the same time on the same day. Melissa will be (or already has, by the time you read this!) publishing a master list of the participants on her blog, so you can go there & tour around to see what other people thought of the same book. The selection this time around was "It Sucked and then I Cried," by Heather B. Armstrong, AKA the blogger known as Dooce. I think the first time I heard the name "Dooce" was around the time of the July 2008 BlogHer conference in San Francisco -- when Melissa, Pamela Jeanne, Lori and Monica appeared on a panel to discuss infertility blogging. I was continually searching Google Blog for "BlogHer infertility" that week to see what the lucky bloggers attending the conference had to say about the panel, & it seemed like every other person was writing about attending a session featuring Dooce, or meeting her -- & writing about it in the awestruck tones usually reserved for royalty. "Who the heck is Dooce?" I thought & so I Googled the name to find out. And found the blog. And cracked up. And added the blog to my reader. Those who have followed Heather's blog from the beginning, or at least longer than me, might already have known some of the story told in "It Sucked and then I Cried." The cast of characters was familiar to me -- Heather, the wildly funny lapsed Mormon, prone to CAPITALIZING FOR EMPHASIS; Jon, her handsome & patient husband; Leta, her gorgeous & precocious daughter (who was named after Heather's aunt, who died when she was 5 months old); and Chuck the goofy dog, whose daily photo post is among the highlights of my day.
But the book goes back a few years before I started following Heather's story, starting when she met Jon, got pregnant, and then gave birth to Leta. And what happened next -- namely, Heather's struggle with post-partum depression (PPD).
You would think the last thing a childless infertile deadbabymama would want to read would be a book about someone else's pregnancy and baby. And yes, there were a few moments in the book when I rolled my eyes & thought, "Oh, boo-frickin'-hoo" -- right at the start of the book, for example, when she writes:
"Without my pills I was wildly irrational, and when we did not get pregnant THE FIRST MONTH WE STARTED TRYING, I was convinced that it meant I was barren. I saw the single line on the pregnancy test and fell into a giant wad on the floor because all I could imagine was years and years of fertility treatments that would never work, and if they did work it wouldn't be until I was sixty. And then we'd have quadruplets. And they'd all have fourteen toes. Because I wasn't good enough." (pp. 4-5)
Yeah, right. Cry me a river, lady. (And welcome to my world.) But I forgave her and read on. Because (a) she's damned funny (even the above passage, I'll admit, had the corners of my mouth twitching, even as my eyes were rolling), & (b) I was interested in her story. Some questions & my answers: Dooce talks about her postpartum depression in the book and what it took for her to fight it, what are your thoughts on that and your experiences, if any, with postpartum depression? One of the main reasons why I was interested in this book was that she was going to address her issues of postpartum depression, which I struggled through with both my children. I found her frank style dealing with this issue very helpful and I could relate to her distress. Have you or some one you know dealt with PPD or depression? How did the author’s experience resonate with you? I did not have PPD. I just experienced the typical postpartum grief that one would expect of a stillbirth mother (if there is such a thing). (Although it's entirely possible for deadbabymamas to have PPD.) But a few years after Katie's stillbirth, at the end of my infertility journey, I was stricken with anxiety. Looking back, I can see that I've had anxious tendencies ever since I was a kid -- and the events of the past 11 years have only exacerbated them. Sometimes my mind will get stuck in a groove, like the stereo needle on a worn-out vinyl LP. I start to worry about something & it will gnaw at me for days & even weeks. Health issues, in particular. Over the past 10 years, with the help of Dr. Google, I have diagnosed myself with all sorts of maladies -- cancer in particular (colon, ovarian, brain, esophagal, melanoma...). It almost always turns out to be nothing, or something very common & treatable (skin tags, hemorrhoids, gallstones....!) But going back to my first full-blown anxiety attack: It was late May/early June 2001. I was 40 years old & had just gotten a Big Fat Negative on my third and final IUI with injectables. Dh & I had agonized ever step of the way along our infertility journey, about just how far we were going to go with this thing. Predictably, perhaps, I was more gung-ho than he was to push ahead & take advantage of all that science had to offer. We wound up seeing an infertility counsellor who suggested setting a limit & then stopping (or at least re-evaluating). We agreed to three. And this was it. Done. No more pregnancies for us. Ever. While wrapping my head around this, I started obsessing that I had OHSS. (Long story short: I did not.) A couple of weeks after AF crashed my party, I was having lunch with my college roommate who, conveniently, works in the office tower directly across the street from mine. It had been her birthday a few weeks earlier, & I was treating her at one of our favourite restaurants, in the concourse of the building where dh & I work. I felt funny that morning. My chest felt constricted. My breathing was shallow and rapid. I thought it might be allergies -- it was that time of year for me. Before I went for lunch, I went into the bathroom, took off my bra & stuffed it into my purse, hoping that would make me feel more comfortable. I tried to focus on the conversation, but it seemed to take a lot of effort. I was very aware of my back, straight against the upholstery in the booth. I started feeling like I was going to topple over onto the floor. When the bill came, I tried to reach for it & I couldn't move my hand. My girlfriend noticed. "Is something wrong? Are you OK?" she said. "I'm not feeling that well," I said shakily. Somehow, we managed to pay the bill & walk out into the concourse. We sat on a bench & she lent me her cellphone. I tried calling my RE's office. Could this have anything to do with the drugs I had been taking? Could it be OHSS? Nope, couldn't be, not their problem. If you're feeling bad, go to the hospital. Gee, thanks. I called dh, who worked in the same office building. He was downstairs in a flash. He loaded me into a taxi & told the driver to take us to my family doctor's office. The ride up Yonge Street seemed to take forever. I can remember breathing heavily & feeling terrified, hanging for dear life onto dh's hand. I was sure I was having a heart attack. We stumbled into the dr's office. Thankfully, there were no other patients in the waiting room, & the dr was in. "I'm sorry, I don't have an appointment," I sobbed, "But I don't feel so good." In about 10 seconds flat, the nurse and the receptionist had me laying down in an examination room & clapped a blood pressure cuff on my arm. I can remember the nurse reading off the numbers & while I don't remember what they were, the tone of her voice was urgent. I laid there & sobbed and sobbed and sobbed. The doctor came in, took one look at me and said, "You're having an anxiety attack." He spoke to the receptionst, she left & returned with a pill in her hand. It was an Ativan from her own prescription bottle. I popped it into my mouth under my tongue, as they told me to, & gradually started to feel a fuzziness enveloping me. Dh explained what we'd recently been through. "Well, no wonder," the doctor said. "That's a major life disappointment." Dh told him about the fertility drugs I had been taking. The doctor flipped open his drug encyclopedia, checked them out & asked us about dosages. "That's pretty powerful stuff," he said, shaking his head. As we talked, they kept taking my blood pressure, & it kept falling until it was back to normal levels. They ran an EKG and that was normal too. They even did a cardiac enzyme blood test to humour me. It eventually came back fine. I left with a prescription for Ativan, which we immediately filled at the drugstore across the street. I had to use it several times over the next week or two. It was almost like I was having aftershocks.
This episode helped to convince me that, yes, we truly were done. If I got this wound up over a mere IUI with injectables, how was I going to handle IVF, with its much larger drug dosages, higher costs and greater emotional pressures? Things settled down, until March 2002. There was a convergence of many stressors in my life, including several big projects at work. Perhaps worst of all, a woman I knew from work, whom I'd had lunch with and commiserated with over infertility and loss issues, lost her third consecutive pregnancy -- a little boy at 22 weeks. And my mother was coming. I was taking time off while she was here -- we had a trip planned to Montreal, just the two of us, on the train -- & felt like I was rushing to beat the clock, to get all my work projects finished and get my house into some sort of reasonable order. And, perhaps, I was thinking about her spring break visit four years earlier, when I had just learned I was pregnant. How happy we all were. How much had happened since then. The night before my mother's arrival, I went to bed, but I couldn't sleep. I was all wound up. I started to cry & to shake, violently, like I had the chills & couldn't warm up, even though dh heaped tons of blankets on me. He finally suggested I take an Ativan, & that helped me to calm down and, eventually, go to sleep. The next morning, he stayed home from work (I already had the day off) and we went to a walk in clinic, but they weren't very helpful, beyond suggesting I get my family doctor to prescribe me some Prozac. (When I asked him about it, he said I didn't need Prozac. I didn't really think I needed it either.) When my mother finally arrived on the train that night, I couldn't hide what had happened to me. I told her about as I sat in the back seat with her & sobbed while she hugged me & spoke to me in that soothing voice that mothers use to make everything better (no matter how old you are). To my amazement, my mother told me me that I probably came by my anxiety quite honestly. She told me there was a period when I was about 9 or 10 when she was having a rough time, emotionally, and took valium. She asked if I remembered how my grandparents had come to stay with us then. My grandparents came to visit at least two or three times a year then, so I honestly didn't remember this particular time. She told me they had given her some money & told her to order herself some new clothes from the Sears catalogue, trying to cheer her up. She told me my grandmother took Ativan from time to time. I could see that -- my grandmother did tend to fret about things. And she said one of my cousins, a kind-hearted and sensitive soul, struggled with anxiety too. Somehow I felt better knowing there might be a genetic component to this. (On my dad's side too, when I thought about it, my grandmother as well as my two aunts also tended to be worrywarts.) I still had a few "aftershocks" for the next few days while my mother was there, & we had to cancel our trip to Montreal -- I didn't want to be sick in a strange city. But after that, things slowly started to get better. I went to a therapist for awhile, and took up yoga. I rarely used my Ativan after that, but it was a comfort to me just knowing it was there in my purse if I needed it. I still struggle with anxiety from time to time, and I suspect that at least some if not all of the "food sensitivities/allergies" that gave me so many problems this past spring were anxiety attacks in a slightly different form. *** *** ***
So that's a long way of saying that yes, Heather's experiences with anxiety, depression and PPD resonated deeply with me. I recognized a lot of myself in her as she lay awake, night after night, waiting for her baby to start crying, unable to turn off the thoughts flooding her brain.
PPD is not something I will discount, even if I've never had it myself. Several years ago, there was an incident in my city that was front-page news for weeks. One morning in August 2000 -- just days after Katie's two-year "anniversary" and in the midst of getting ready for my first IUI with injectables -- a 37-year-old doctor, a first-time mother, left her home in an upscale midtown neighbourhood with her six-month-old baby boy, drove to a nearby subway station, went down to the track level &, cradling her baby, leaped in front of an oncoming train. The baby died instantly; the mother died after nine days in the hospital. It's believed she had stopped taking anti-depressants because she was breast-feeding her son & was afraid they would harm him. They believe she had post-partum psychosis, the most severe form of PPD. That story haunts me still. I can never hear a story about PPD without thinking of that mother & her baby. I am so glad that Heather sought, & got, the help she needed when she did. Heather obviously has a very distinctive writing style that comes across in both her blog and her book. What do you think has made Heather such a famous blogger? Her writing style, honesty, or something else? Do you write with the same passion and honesty that Heather does? I WISH I could write like Heather!! (And there, I used capitals -- so maybe that's a first step, lol.) I think it's a combination of things -- her writing style, her humour, her absolute honesty (especially about herself and her own shortcomings) & her willingness to share the ups and downs of her life with her readers. I keep reading the blog because I want to find out what happens next. She recently gave birth to her second daughter and was candid in talking about how she handled her PPD issues this time around. (And the Daily Chuck photos make my day. I am not much of a pet person, but that dog has personality.) I was not familiar with this blogger before I read this book. I did like her sense of humor. However, I did not feel like this made me know her or her blog any better. Reading this book, do you find that you want to read her blog, or if you have read her blog, is this is a good representation of her? Having read the blog before the book, I would say it is a good representation of her and how she writes. The book, obviously, tells more of a whole, coherent story, whereas the blog (like many of our blogs) talks about what's happening in her life from day to day. What 2-3 specific situations, quotes or stories did you most relate to throughout the book? (I found myself laughing or becoming quite reflective at times because something Heather had written about struck a chord for me and I’m curious if the other readers related to her book in this way). I think I was most touched by the part of the book set in the mental hospital where Heather had herself committed. I was particularly touched by her descriptions of, and gratitude towards, her doctor:
"He had read my chart -- imagine that! He had done some research! On me! His patient! And within five minutes of talking to me he determined why and how the meds I'd been taking weren't working... I could tell that he wanted to see me get better, and knowing that he cared, even just a little bit, made me feel SO MUCH BETTER." (p. 193)
And a little later:
"At one point in our conversation he set down his pen and paper, paused, and then looked at me and said, "You poor woman. I am so sorry for what you have been through." And I cried. I cried hard. My God, what I had been through." (p. 196)
In my pregnancy loss support group, on blogs & message boards, I hear so many horror stories about doctors and nurses, whose attitudes toward their vulnerable patients seem to range from clueless to indifferent to brusque to criminal. Doctors who have clearly not read the chart before walking into the examining room. Emergency room nurses who have handed buckets to miscarrying women & pointed them toward the bathroom. Who wouldn't want to have a doctor like Heather's?? Competence combined with empathy -- someone who knows what we've been through and tells us that, no, we're not imagining things, it really does suck that much. That's quite a lethal combination.
Another part of the book that struck a chord in me was the saga of the kitchen renovation. We did a bathroom renovation last fall that was far less uneventful than Heather & Jon's kitchen reno. We had dh's stepbrother do the work for us -- and I wasn't eight months pregnant. But it was a big disruption in our lives nevertheless.
Our kitchen could stand a makeover too -- if not a full-scale renovation, then certainly a refresh (restain the cupboards, change the hardware, do a backsplash, etc.). But after the bathroom reno, I wasn't sure I was up to even that. I'm still not sure I am. Just reading about Heather's reno made me exhausted. If you are in a relationship right now, do you relate to how Heather talks about her husband, Jon, and what a great father and life partner he is? From what she described about Jon, what qualities do you have or want in your life partner?
I do relate -- because I have a pretty great husband myself. : ) He has his faults, of course, & he has own struggles with anxiety, and sometimes we feed off each other, which is not a good situation. I like to think that I am a pretty strong person and that I can handle a lot of stuff on my own. But whenever I have needed him to take care of me, as in the case of my first major anxiety attack, he has always been there. I knew that childless/free living was an option I could live with, because we already had a pretty good life together before we ever started ttc, and we could still have a wonderful life together with just the two of us. He would have been (he is!) a wonderful father, and I sometimes get sad seeing him having fun with other people's children, knowing that. But we have each other, and that is a lot more than many people have already. Hop along to another stop on this blog tour by visiting the main list at Stirrup Queens (http://stirrup-queens.com). You can also sign up for the next book on this online book club: The Phantom Tollbooth by Norton Juster.

Thursday, October 8, 2009

No kids? No problem!

The Wall Street Journal is not somewhere you'd expect to find articles on parenting, but they actually have a blog called "The Juggle" that brings up some interesting work and family-related issues.

Yesterday's column posed the question: "Has the workplace become so pro-family that if you don’t have a child, you have to make one up in order to get fair treatment?" For those who say "yes," there is, apparently, a solution of sorts: The Office Kid. "With one simple kit, you can do as your coworkers with children do -- make excuses, miss work and blame it all on your kid," the site says. The kit includes a framed snapshot of a child and a childish drawing to display in your cubicle. (!)

I've blogged about being childless/free in the workplace before. I guess I'm fortunate that I've never really felt taken advantage of at work because of my childless status. (Of course, until just a few years ago, few of my immediate coworkers had young children.) I'm willing to cut my co-workers some slack for whatever reason, so long as they don't abuse it, & I expect they would do the same for me, kids or not.

Also, I've never been one to hang around the office at the best of times. As a couple of the commenters said, you have to manage people's expectations. Maybe I'm foolish -- and I'm not particularly ambitious -- but I'm just not into accumulating face time to score brownie points with the boss. I'm already away from home 11 hours a day, including the commute -- and after a certain point in rush hour, the trains only run once an hour. That's a long enough day, in my opinion. I don't mind picking up slack for sick or overly busy coworkers occasionally, and I will stay late (or take work home) if it's necessary -- but most days, when the clock strikes 4:30, I'm outta there. I may not have kids, but I have a life too. (At least I think I do, lol.)

But I do know this is an issue for many childless/free people.

One anonymous commenter (who apparently can't spell) had this to say:
"Why do you fell this way, having kids DOES entitle one to flexibility, if you are jealous of you co workers having flexibilty because of kids, simple fix is to have your own kids, then you can actually contribute to soceity instead of wishing for what others have. Grow up"

I felt like cheering when, a few comments down, I read this:
"I most likely can’t–and many others can’t either. Thanks for providing such a “simple,” empathetic, and well-thought out solution, those struggling with fertility (and those, like me, who have come to terms with being childless) certainly thank you. Wow. I’m able to manage my situation quite well, but I am a manager. Others aren’t so fortunate. Since being a mom doesn’t appear to be in the cards for me, I’ve developed a full life outside of work that should command just as much respect as those who have children."

Whoever you are, thank you!!

Wednesday, October 7, 2009

Contrast & perspective

I got on the elevator this morning with two of my colleagues. Both single, in their 20s, young enough to be my daughters (!), marriage, children and mortgages all still ahead of them. Dewy complexions, latest fashions, radiating the absolute confidence of youth. They gave me a glance & a perfunctory nod, but continued chattering about their BlackBerrys and data plans. It was like they were speaking a foreign language.

Once, I was like them. (OK, minus the BlackBerrys.) I know they would find it hard to believe, but some day, they too will be in their late 40s, tired, struggling with their weight and fine facial lines and grey hair, wondering how this happened.

I got off the elevator -- & almost ran into an elderly man, hobbling along slowly with the assistance of his cane.

Once, this man was young and handsome -- a varsity track star who became famous for dancing with a princess, went into politics and, briefly, was the prime minister of Canada. He recently celebrated his 80th birthday. (And he still goes to work.)

Some day, I, too may grow to be as old as he is.

And probably wish that I was in my 40s again.

Tuesday, October 6, 2009

Aunt Lori panics

BIL called last night to invite us for Thanksgiving dinner (which here in Canada is this coming Monday) -- pre-empting my ambitions, outlined in my rant at Eastertime, to start making our own holiday plans & maybe go away somewhere for the weekend. At least he called us a week ahead & not at the last minute.

Besides, I really can't miss this one:

Our oldest nephew (who will be 21 in December) is bringing his girlfriend to meet us.

Gulp.

I am so not ready for this. How do parents do it??

Saturday, October 3, 2009

Here comes the bride...

My parents moved into a new home in a new town in the spring of 1984, shortly before I arrived home from grad school. I wound up living with them and working locally for the next 14 months while I planned my wedding to dh.

The neighbours across the street had two small boys -- AND a new baby girl -- a real cutie with strawberry blond hair, big, long-lashed blue eyes and a rosebud mouth. Little boys I couldn't quite relate to, but a little girl -- well, THAT, my family had experience with. We were all quite taken with her.

Almost as soon as she could walk, she was toddling over to our house to play. We'd watch her from the living room window as she tromped through snowdrifts & stomped on every frozen puddle along the way, lol. My mom dusted off the ancient high chair that had belonged to me & my sister, as well as our old toys & books. My dad would give her piggy back rides and build tents with her, as he had done with me & my sister and our cousins, and my mom would sit on the stairs with her & "play cards," helping her learn her numbers by reading the numbers on the cards & counting the number of aces or hearts on them. As she got older, she loved to join in our family's card & board games (still does!).

When dh & I arrived home for our first married Christmas, Parents' Neighbours' Daughter (PND) was the guest of honour on Christmas Day, resplendent in purple velveteen, and was showered with gifts. Eventually, she got her own stocking under the tree at our house. She would come over for dinner on Christmas Eve and then back again the next morning to open presents with us, after opening gifts with her own family. Sometimes the other members of her family would come over too (we'd have small gifts for them too). She hasn't always been able to make it on one day or the other, but to this day, some time during Christmas week, she will stop by for dinner, open her gifts and play cards with us.

Christmas 1998 was a difficult one for my family, reeling from the loss of both my baby & my beloved grandfather, who had spent every single Christmas with us, no matter where we lived. PND, then 14, was a godsend, giving us something else to focus on and lending our family a much-needed dose of holiday spirit.

When I started scrapbooking in 2002, one of my first projects was to make a scrapbook as a high school graduation gift for PND (something only a clueless beginner would take on...! lol). I had so many cute photos of her from almost day one to share. It was a labour of love. The scrapbook eventually became a gargantuan project (I actually wound up giving her the first part for graduation & the rest of the pages as I finished them). A scrapbooker herself, she was flabbergasted when she opened the package. "I can't believe you did this for me," she said, giving me a big hug. Everyone -- her parents, my parents -- got misty-eyed looking through the pages.

She once called me her "role model." She forever endeared herself to me when my mother told me a story: in conversation with little PND, my mother once said, "We all know who's the REAL boss around here" (meaning herself, joking). PND nodded solemnly & said, "Lori." lol

When PND was little, she referred to my parents as her best friends. When she got older and went to school, she started making friends her own age, but she would still come over to watch TV, help my mother make cookies and wrap Christmas presents, etc., albeit with less frequency. When PND's parents & brothers moved away, after she was finished high school, she spent one summer living with my parents. She continued to live in the town where she'd grown up on her own, work part-time and commute into the city to go to school, an hour away. She started going out with Fiancé four years ago, & eventually moved in with him.

This week, she called dh & me (& tickled us both hugely by doing so) to tell us the big news -- she's engaged!! The community hall is already booked for the Victoria Day long weekend in May.

So -- on top of my 25th wedding anniversary, my parents 50th & a family reunion next summer, I've also got to set aside time to fly home in May for a few days for her wedding. (eek) Needless to say, wild horses wouldn't keep me away.

It is bittersweet to think of PND getting married. I keep thinking "She's too young!" -- but she will actually be 26 by the time of the wedding. I was 24. (yikes) She has one more year of school left -- she's going to be a teacher (& she will be a great one, too).

I remember when we had a big party to celebrate my dad's 50th birthday. PND was 6 years old then. My aunts wanted to take a family photo. "I'm part of the family too," PND piped up. "Yes, I guess you are!" my mom said, laughing, & welcomed her into the photo.

And she is. My parents have sometimes referred to her as "the honorary grandchild." She certainly helped fill my parents' empty nest after my sister & I had left home, & took (some of) the pressure off dh & me as newlyweds on the grandchild front.

My sister has referred to her as "our little sister" (and you can almost hear the air quotes as she says it). I don't know exactly how to label our relationship. I know I am old enough to be her mother, but it's hard to imagine myself having a daughter that old.

All I do know is that I feel so lucky & privileged to have had this girl in my family's life (and grateful to her own family for sharing her with us). I may never have had a living child of my own to parent… but I've played a part in PND's life and been able to watch her grow up into a beautiful & accomplished young woman. I will never see my own little girl dressed in bridal white, walking down the aisle, but I will be there when PND does. My parents may never have their own grandchildren, but they have watched PND grow up and have played a significant role in her life. The geographic distances between us being what they are, I know they have spent far more time with PND than they ever could have with any grandchildren I ever could have given them.

We are all so very proud of her.

And I know that I'm going to be a blubbering mess next May 22nd.

Coming soon: Blog Talk Radio: Deciding to Live Childfree

Pamela Tsigdinos, aka Pamela Jeanne, of Coming2Terms and Silent Sorority, among other places on the Internet, will be a guest on Creating a Family, an Internet radio show that deals with family building issues, on Oct .7, 2009, at 12 noon. Those able to listen in live can call in with questions. If you have to work (as I do)(boo, hiss), the broadcast is archived so you can listen in later at your leisure. Always great to hear from Pamela! : )

Friday, October 2, 2009

NYT article: "After a Death, the Pain That Doesn't Go Away"

The New York Times had a good article about complicated grieving last week. Grief is a complex emotion, of course -- no two people will grieve the same way, even when they're both grieving for the same person. One person may grieve the death of one person one way, and another person another way. We often don't know just how we're going to react until we are in the middle of the experience.

As always, the comments are at least as interesting as the article. (Unfortunately, new comments are no longer being accepted.) I braced myself for the "get it over it" jerks, & yes, there were a few of them -- but I was pleasantly surprised by how few -- perhaps because the discussion was about complicated grief generally, & not grief over a miscarriage or stillbirth ("but you never got to know them...")?? There were some heartfelt stories about the effect that grief has had on their families, and sympathetic words of comfort & advice. Here are some of my favourites:
  • Comment #11 (from a woman whose husband committed suicide): "I received no professional assistance, but I was expected to wipe the slate clean and move on (by well-meaning and supportive family members), but I never recovered from that loss. It colors my every waking hour."
  • Comment #14 (from a hospice nurse): "Death is not something our society embraces. It is really odd that we pretend that it could never happen to us. But it does and it will. I think that much of the problem lies in the fact that people, including family members, simply do not know what to say. So they are silent or try to change the subject. Here is some advice. Talk about the deceased. Don't worry that bringing them up will cause the bereaved more pain. The pain is always simmering. Talking about a loved one is a comfort many times. It proves they were important, that they have not been forgotten. Call a friend or family member on the anniversary of a death. Send flowers. Take them to a movie. Don't let them be alone. That is a tough day, even 10 years later. Hug them a lot. Try to understand that many times letting go of the grief feels like you are abandoning the deceased. Do not advise them to "move on". That is simply cruel... Grief is not that complicated. It hurts a lot, and it does goes on and on, some just simply cope better than others and some have learned how to hide it very well. Allowing people to grieve is the most important thing we can do. For however longs it takes."
  • Comment #26: "For me cyberspace has become the collective unconscious. After starting a blog I connected with other elder bloggers and could suggest that since writing is considered good therapy for grief doing it as a blog could be even more therapeutic."
  • Comment #28 (a widow): "While on the surface all appears well, underneath the public mask is great sadness and doubt. I don't like the term "moving on", to me it means leaving behind. I prefer "moving forward", taking the best of what memories I have with me."
  • Comment #29: "It took many years of therapy and support by a few steadfast and wonderful friends before I finally came to the realization that bad things happen to good people. It was as simple as that."
  • Comment #40: "as grieving and "closure" -- for get that - you will always at some level grieve for someone you loved.... it's just that way... at the best you can grieve and remember happy times concurrently."
  • Comment #49: "Western culture tries so very hard to control the uncontrollable in life, but grieving is hands-off. And grief needs to be encouraged. The only way out of grief is through it. With or without the help of others. I believe more damage is done by hiding or 'stuffing' grief because our society doesnt want to have to share in the really painful emotions of others, and so it is frowned upon to wail or weep incessantly where others are present... The person(s) suffering from deepest loss find themselves with a load of pain and nowhere to vent it. So yes, it turns into depression. Yes it turns into addiction. We are trying to kill this pain!"
  • Comment #51: "Of the many hideous and stupid things people said to me during that period, the most thoughtless one was something I saw in this article: "You've got to get on with your life."As every widow and widower knows, I couldn't "get on with" my life. My life -- the life my husband and I had planned together, the names of the children we wanted to have, the work we wanted to do, etc. -- had ended. So I couldn't get on with something that was over. I had to find a new one... I just hope people don’t feel there is something wrong with them because it’s taking longer than their non-grieving friends think it should. Grieving is normal and natural. Most people don't need professional help. They just need time and friends. There aren't enough good listeners in the world. Just listen."
  • Comment #56: "If death were treated as part of life, which it is, then these conversations would be a natural topic of discussion with our doctors or healthcare providers always, not when we're suddenly faced with grace illness. It wouldn't strike as much panic in our hearts if we dealt with this sooner and more completely."
  • Comment #77: "The death of a spouse renders us no longer a couple; the death of a child deprives us of being a parent; the death of our parents makes us no longer anyone’s child. We cannot “recover” from this; our task is to create a new identity."
  • Comment #90: "I can't help but think part of the problem with bereavement in general is that our whole culture is structured around the denial of death. I have often seen situations where those grieving are almost treated like pariahs, specially if they don't quickly "get over" their loss. We should look at other cultures where there are extensive rituals around death and mourning, where friends and relatives gather around to allow one to grieve and to grieve with them, where it is OK to grieve deeply and for much longer than a few days, weeks, and even months. I wonder of "complicated grief" exists to the same extent in those societies."
  • Comment #126: "Eventually I arrived at the realization that you never "get over" a major loss like this. Rather, you incorporate the loss into the totality of your person, you eventually grow around the void, but the void remains an integral part of who you are. In time -- sometimes a very LONG time -- that void ceases to define you or dominate your life the way it once did, and you do begin living once again. But it is always, always with you."
Many people found the article interesting, but weren't sure whether complicated grief needed to be classified as a psychiatric disorder. They debated whether psychiatrists can help. A few people took exception to the idea that "grief, like the tape, can be picked up or put away." I didn't particularly like that idea myself. Eleven years after the loss of my daughter, I don't walk around crying all day. I carry my grief with me, as part of me. It's not put away on a shelf, to be brought out & dusted off on special occasions.

Still, from what I've been told in training seminars for my pregnancy loss support group, and from what I've witnessed in my own experience, there is a certain value to telling one's story, over & over again. That's why we ask everyone at every meeting to tell their story, or at least some version of it -- even if we've all attended meetings together for a long time & could practically recite each other's personal histories.

We had a guest speaker at one of our training sessions once, who spoke about about complicated grief. She likened it to post-traumatic stress disorder (PTSD), a comparison the article also makes. If I remember correctly, she said we need to tell our stories something like 50 times over before it can get "unstuck" in our minds & we can really begin to process what has happened to us. And each time we tell our story, we process another piece of it in our minds and absorb it, until it becomes not just something awful that has happened to us, but part of who we are now. And as we tell the story, it changes -- new bits & pieces may emerge that we hadn't thought about or discussed before, or new insights. I've known our co-facilitator since she started coming to group as a client 7 years ago, and every now & then, even today, she will come up with some new little detail about the awful night she lost her daughter that I've never heard before. She's said the same thing about me!

Of course, the problem is that far too many of our family members & friends -- even the most patient & sympathetic among them -- don't want to listen to us recount the details of our losses, over & over again. That's where support groups play such a valuable role in helping bereaved parents integrate their losses into their new lives, by allowing them to talk (& talk, & talk, & talk...) about their losses, and providing a listening ear.

Have a read & let me know what you think!