Showing posts with label SPALS email list. Show all posts
Showing posts with label SPALS email list. Show all posts

Thursday, September 19, 2024

World Childless Week 2024: Day Four: Childless Friend or Foe?

Day Four of World Childless Week 2024 is about friendship -- "Childless Friend or Foe?" From the website description: 

 Have you seen or felt the gap of friendship widen as friends become parents? Have you struggled to find mutual ground and felt pushed aside as they navigate to other mums, cancel dates or suddenly appear with a baby in tow when it was supposed to be a girl’s afternoon? Have you had a situation where a friend who you thought understood has suddenly made a comment or sent a photo that totally broke down the bond you had? Who was it who pulled away, perhaps you did and are happier for it; or maybe there is lasting sadness? Or have you stayed friends with someone who really has been there for you and tried to understand even when they truly don’t? Maybe you’ve reached out and reconnected with a past friend or created a whole new friendship circle. 

How do you feel about building friendships, are you confident to reach out to mums, the childless and childfree alike in order to build bridges and create understanding?     

This blog includes nearly 500 posts (!) labelled "family/friends."  Clearly, there's a lot to talk/write about when it comes to our friends and families, and how they support us -- or not -- as childless people.  It's also clear that I did not have the time nor the energy to comb through 500 posts in search of some good representative posts to share here...! 

I did, however, remember that I have written a lot of posts about the support I've received from childless women in online communities over the past 20+ years.. Some of them are tagged as "iVillage message board" and "SPALS email list."   

As I went through those posts -- and did a search specifically for posts about "friendship" -- I found a couple of posts that seemed worth noting:  

Check out today's content on the WCW site, including community members' contributions, and two free, live webinars related to this subject. They will be recorded and the links will be posted later on the Day Four page for anyone who cannot make the live event. 

Monday, August 26, 2024

#MicroblogMondays: Online friends are real friends :)

Katy at Childless Collective wrote a blog post for the World Childless Week website recently titled "Online Friends are Real Friends." 

Amen!  My online friends are just as "real" to me as the people I know "in real life," and in many cases, they have been there for me over the past 26 years in a way that my "real life" family and friends have often not. I was lucky enough to find a "real life" local support group shortly after we lost Katie in 1998 (and wound  up staying 10 years as facilitators), but that group only met twice a month at most. Especially in those early days of bewildered grief, I craved something more.  And I found it, online.  (Even in those pre-blogging, pre-social media, pre-Zoom days!)  

I've written in the past about some of these friends -- the women (and a very few men) on a pregnancy loss email list I joined a few weeks after Katie's stillbirth;  the friends I made on the iVillage Childless Living message board in the early 2000s, several of whom I'm still in touch with regularly today.  And, since 2007 (17 years!!) bloggers.  I've been lucky enough to meet a few of these online friends face to face over the years too.  

Add one more to the count. :)  

A couple of Sunday nights ago, Mel -- the Stirrup Queen herself  -- messaged me:  "So totally random question - are you around this upcoming week because we just decided to come to Toronto."  

Me:  "Are you serious??!!  I would LOVE to meet up!!!!" 

If you're reading this post, you no doubt know Mel too, and all she's done for the blogging community over the past 18 years.  Blogging is, admittedly, not the force it once was (although I think it's just taken on a new form lately, i.e., Substack) -- but there was a time, pre-social media, when there was a flourishing community of adoption, loss and infertility bloggers -- and Mel was at the centre of it all, with her gargantuan blogroll and other regular community-building features and projects -- like this #MicroblogMondays, the Friday Roundup (which recently marked 1000 Friday posts!), the Lushary (which was always a favourite of mine, lol), the Barren Bitches Book Tour, the annual Creme de la Creme list of our favourite blog posts from the year, and so much more.  

Mel responded to some of my early tentative comments on her blog -- and encouraged me to start my own, back in (gulp) October 2007 -- almost 17 YEARS AGO.  To get to finally meet her -- AND her family, after hearing/reading about them all for so many years (from the twins' first day of kindergarten (!) to their departure for college!) -- was a surreal experience.  

(The hugs, however, were very real.  :)  )   

Several days and even more emails back & forth later, deluging Mel with suggestions for places they might want to visit during their stay (lol), I trekked downtown via subway to the Toronto Eaton Centre for the first time since before the pandemic, and we had dinner together on the patio of one of the restaurants there. (I had warned Mel about all the construction, roadwork and repairs going on in the city -- never dreaming that would include SANDBLASTING the walls of the old church across from the restaurant where we were eating!!  What a racket!  Thankfully, they did stop work for the evening, after we'd been sitting there about 45 minutes...!)  And after dinner, we walked through the mall to the Indigo bookstore, where Mel and I wound up standing and talking for more than an hour in the Mystery aisle ;) before I reluctantly headed home again.     

The visit was far too short, but I'm so glad the stars aligned to make it happen. 

Are online friends real friends? You bet.  ❤ 

You can read Mel's thoughts about her Toronto visit here

You can find more of this week's #MicroblogMondays posts here.  

Wednesday, February 27, 2019

"Childless Mother"

I found this poem online, many years ago, when I was first coming to terms with a childless future, and shared it with the email list I posted about recently in 2001.  I found it again when I was going through some old posts to the list this week.  I am not sure whether I have the correct line breaks here, as the formatting has gotten a bit garbled in translation from one computer to another over the years...!

When I started my blog in October 2007, one of the blog names I strongly considered was "Childless Mother," because of this poem.

Childless Mother

I am a childless mother.
There is an empty hole in my heart
Where my child is supposed to be.
Where there should be squeals and laughter
There is nothing but mind-numbing silence.
And look, there, in the corner sitting idly,
Waiting, is a child's rocker, my rocker –
The rocker that I used to sit in and imagine
Rocking my baby instead of just a doll.
And I realize, that as empty as that rocker seems,
My arms feel even heavier with the emptiness.
How can emptiness feel so heavy?
That emptiness carries my broken dreams,
My disappointments, my resentment.
Flutterby kisses never shared,
Laughter never heard,
Tears never brushed away
All weigh more than a child ever will.
There is an empty hole in my heart
Where my child is supposed to be.
I am a childless mother.

Louise C. Taylor (1997)

Tuesday, February 26, 2019

End of an era

In those first few awful weeks after I lost Katie, and especially once my parents left and dh went back to work, I spent a lot of time on the computer, searching endlessly for answers -- why had this happened to me? -- and reassurance that I wasn't the only one out there to have experienced this tragedy.  I found some message boards, but being relatively new online, I was a little leery about putting myself out there in such a public way (even under a pseudonym). (Blogs had yet to be invented, or at least popularized, and Facebook was still 7 years away from being launched.)

And then I found a website connected to a private email list for women (& men, although the vast majority of members were women) who had lost babies and were either trying again, or experiencing a subsequent pregnancy. It was called Subsequent Pregnancy After a Loss Support, SPALS for short.  I was accepted as a member, opted to receive digests instead of individual emails, and wrote my first post, introducing myself and telling my story.

And then watched as my inbox filled up with messages of welcome and sympathy.

I had found my tribe.

We started attending an in-person support group, once or twice a month, around the same time -- but that was a LONG time between meetings for a newly bereaved mom. SPALS filled the gaping hole in between "real life" meetings, and became my daily lifeline, especially in those early weeks & months. When I went back to work in October, fellow SPALSers were there with advice & support. They were there when we started trying to conceive again, and when we sought help, first from Dr. Ob-gyn and then Dr. RE.

It was customary for members to include their TM (Trying Mom -- pregnant moms signed themselves as PM, or Pregnant Mom) status as part of their signature... mine looked something like this:

Lori
(email address)
Mom to Kathleen Maria (Katie), s/b @ 26 wks LMP, Aug. 7/98.
TM cycle #xx

Below my signature, I added:

"Life is what happens while you're making other plans." -- John Lennon

eventually joined by

"We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us." -- Joseph Campbell

(Both quotes now appear in the sidebar of this blog.)

My final failed IUI (in June 2001, when I was 40) marked the end of cycle #27 since we started trying again after Katie's stillbirth. Skimming through my old emails to the list (I have saved almost every one of them! -- hundreds and hundreds of them, over the years), I found this one from September 8, 2001 (just a few days before the tragedies of September 11th):
Hi everyone, 
A SPALS friend recently commented to me that I'd been rather silent lately & asked whether I was still staying with the list, given that I've stopped infertility treatment.  So I thought it was time for a bit of an update on where my life is at. 
I guess one reason I've been quieter (though not completely silent -- I counted & I did post nine times in August!) is that I have not returned to the RE, so I don't have any day-by-day updates on treatment to report on anymore!  While I reserve the right to change my mind, I don't think I will be going back anytime soon, if ever. 
This doesn't mean we have given up ttc altogether -- but I know our chances are pretty slim.  I got one of the Clearplan Easy Fertility Monitors & started using it this cycle (now cycle #30!), but I have no great faith that it will work where 300 IUs (4 amps) nightly of GonalF & IUI didn't.  I'm just trying to looking at it as neat gadget I can have some fun with!  : ) & not obsess too much... 
While part of me feels guilty for "giving up" when I could have tried IVF, donor egg, a surrogate or what have you, I have reached the point where the physical, emotional & mental strain of treatment just got to be too much. I've come to realize that just because the option is there doesn't mean that you have to try it, or that it's personally right for you.  In a way, I think it was simpler 30 or 40 years ago, when you either had kids or you didn't, and didn't have all these choices to make  & dilemmas to weigh! 
Everyone has their own limit, & I think I reached mine, as evidenced by the anxiety attacks I had in June. I have not had any since then, thankfully, & while I sometimes get depressed knowing that, by giving up on treatment, we likely won't ever have a living child of our own, it feels good to be free of that particular source of stress in my life.  I have been hanging out on several "childfree living" forums on the Web & trying to focus on dh, projects around our home & the good things we have in our life together, instead of what I don't have & may never have. 
I still plan to stay with the group.  Regardless of whether I ever have a living child, I do have a daughter, even though she is not on this Earth, and this is one of the few places where I AM recognized as a mother.  What I have been through these past 3-4 years has shaped who I am today, & will always be a part of me.  SPALS has been a big part of my life.  Next week it will be three years since I joined, & I honestly don't know how I would have survived without all of you to lean on! 
So even though the "subsequent pregnancy" part of the equation has continued to elude me (& may never come to pass), I hope I can still be of some support to the rest of you. 
Besides, I can't leave now -- I still have to see all the oldtimers, like [names], through their SPALS pregnancies!  : )
Much love & hugs to all...
Despite what I wrote, I gradually (perhaps inevitably) drifted away from the list. I still kept updating the cycle number in my signature for another year or so, but once I hit cycle #40 (sometime in 2002), something in me broke, and I changed it to "too many cycles to count anymore!"  By mid-2004 (when I was 43), I stopped referring to my cycles completely.  

For a while, I continued to respond to posts when I thought I could offer my experience or advice. But my words felt less and less relevant as time went on, I got older, the newly arrived grieving members seemed to get younger, and the remaining oldtimers I knew delivered their subsequent "rainbow" baby... and then a second, and sometimes a third, or more.  

I only posted twice in 2005, once in 2006 (on Katie's birthday) & once in 2007.  I haven't posted there since then. And gradually, the digests landed in my inbox less and less frequently, until I was receiving just a few digests per year. Apparently most of the action eventually moved over to a Facebook group. I have remained in touch with a handful of former SPALSers over the years, mostly as Facebook friends. One of them (Julia, who lost a daughter the very same day as I lost mine) later became a blogger (although she's no longer active there).  

Still, I couldn't bring myself to unsubscribe. 

I got a new digest this morning, the first in several months, I think. As I scanned over its contents, I felt a pang of sadness -- and then a warm wave of nostalgia &  profound gratitude.

After 24 years, the longtime list administrator -- a bereaved dad who was one of the early members of the list himself -- is shutting the list down.  For many years, the listserv has been run from a private server donated by a(nother) bereaved dad who benefited from the list. He can no longer offer us the server, and while it would be theoretically possible to move the list elsewhere, it has been effectively dormant for several years now, and new members have not been admitted for some time.

And so the list where I first found solace online as a newly bereaved mom, 20+ years ago -- and where thousands of other bereaved parents from all over the world have found a safe haven over the years -- is ceasing operations. Several members have responded to the admin's post announcing the end of the list with final posts of thanks. I sent one of my own this afternoon. I also removed the site from my list of resources on this blog.

Thank you, SPALS. I will always treasure the years I was a member, and be grateful for the support I found there.

Wednesday, December 12, 2018

A blast from the past

I was at the local mega-bookstore earlier this week, browsing the women's health section, when a familiar title caught my eye.

It was a 20th anniversary edition of "Taking Charge of Your Fertility: The Definitive Guide to Natural Birth Control, Pregnancy Achievement, and Reproductive Health"  by Toni Weschler (first published in 1995; revised & expanded in 2015, and popularly known as "TCOYF").

I had first seen this book around the time it first came out -- which happened to be around the same time I'd stopped taking birth control pills.  I'd assumed I'd be pregnant within a few months -- but that wasn't what was happening. I'd taken surreptitious peeks at the book during bookstore visits, but I was too squeamish to show up at the cashier with such a title in my hand -- an admission that we might need some help.  ;)  I eventually did get pregnant in early 1998 without consulting it.  

Of course, you all know what happened next.  By the time our daughter was stillborn in August 1998, I was 37, fast approaching my 38th birthday, and hyper-aware that my biological clock was ticking louder and louder. My first question to Dr. Ob-gyn when he visited my hospital room, post-delivery, was "When can we try again?"  

I bought my copy not long afterward, while I was still on leave after Katie's stillbirth, along with the recommended basal thermometer. I ripped out the temperature charting template page at the back & took it a Kinkos across the street from the hospital, the day I had my six-week post-partum checkup with Dr. Ob-gyn, & had some copies made (since I wasn't yet back to work with easy access to a photocopier).  (These days, there's a TCOYF companion website, with downloadable charts and even an app, along with Weschler's blog and an online community.)

TCOYF was "the Bible" of the subsequent pregnancy after loss e-mail group I joined that fall, where everyone was either pregnant after a loss, or desperately trying to be. There were many conversations and questions among the list members about "ewcm" (egg-white-like cervical mucus -- an indicator of ovulation), cervical position (high? low? open? closed?), dips & peaks in basal thermometer temperature, and other such intricacies. 

I know several list members swore by TCOYF and credited their subsequent pregnancies to the knowledge they gained from it.  Needless to say, it didn't work for me. After a year of charting and trying to conceive on our own, I knew there was no further time to lose, and pressured dh into consulting Dr. Ob-gyn -- which sent us down the slippery slope of fertility testing, a referral to Dr. RE, several rounds of clomid and three IUI cycles with clomid plus injectable drugs (all unsuccessful). Even though I was told it was not necessary, I continued to chart through it all, and for some months (years??) after we abandoned fertility treatment, secretly still hoping for that elusive "miracle baby."

Eventually, I stopped doing that too. The book, which sat in the pile by my night table for so many years for easy consultation, went into a plastic bin full of (in)fertility books in my closet, along with the folder of pages and pages of carefully plotted monthly charts.  I think I still have the book (along with my keepsake copy of "What to Expect While You're Expecting"), although the charts went into the shredder some years ago.  

Even though it didn't result in a baby for me, I am still very glad I read the book, & I still recommend it. I learned so much from it about my body and how it works, and I still automatically recognize the signs of when I'm ovulating and when my period is coming. I think it should be required reading for all young women, fertility issues or not (& probably young men, too).  

Was TCOYF part of your (in)fertility journey too?  

Saturday, July 15, 2017

It takes a village

A Facebook friend recently shared this article/blog post, titled "In the absence of a village, build one." My friend added the comment, "We do not have do to it alone. Find your village, love them hard."  

The article is written from a mommy-centric perspective, for an audience of other mommies. (Which seems ironic from an infertility/childless perspective, because from where we sit, motherhood seems like a highly exclusive country club that everyone else gets to join and hang out with -- except us, of course.)(Scroll down to the comment from Jen on July 14th.) But I think that with a little imagination and some rewording, the thoughts shared here could apply to those of us in the adoption/loss/infertity community (or just about anyone, really).  

The author notes, "The time when you need a village the most also happens to be the time when it’s hardest to build one." She's thinking about her kids and their childhood, of course -- but I immediately thought about those awful days, post-loss, during infertility treatment, post-stopping, when I felt so completely alone.  (Maybe not in the immediate days after my loss, of course, when friends & relatives rallied round, called and sent flowers and cards, but in the weeks & months afterwards, when they assumed things were "back to normal" and got on with their lives, assuming I was doing the same thing. I wasn't.)  

*** *** *** 

First, let's look at the barriers to finding your village identified in the article. (Not all might apply to your personal situation.)

Barriers to finding your village   

1. The age of fellow moms in your life—and the ages of their children

The age you're at -- when you're going through infertility/loss, when you have children, or just going through life, period -- can make it harder to find your village. If you're in your 20s & 30s, some of your friends might be having babies, some might still be looking for someone to have babies with. The ones having babies might not understand what you're dealing with, if you're going through infertility & loss -- and even if they do, they're obviously busy with other things;  you and your problems aren't their priority.  If you're trying to get pregnant in your 40s while all your friends have already had their families (some of them even becoming empty nesters...!), you can certainly feel out of sync with them. Even if you eventually do have a baby or adopt a child late in your reproductive life, there might be quite an age gap between your kids and theirs. Your friends may have already found their mommy tribe and feel more comfortable talking about school PTA meetings with the other PTA members, rather than comiserate with you about your lack of sleep. If you never have children, by choice or by chance, you will most likely feel shut out of the loop while your peers build their families. Working (and working & commuting) can make it difficult to find new friendships and maintain old ones. And if you're like me, & retire early, you can sometimes feel isolated if most of your friends are still working.

2. The arrangement of work & life

"For example, mothers who work outside the home may have a hard time connecting with moms who stay home. There are only so many hours in the day…" the article says. And, I might add, both kinds of moms often have a hard time connecting with non-moms, and making room for them in lives that are now laser-focused on all things mommy & baby-related.

A little more about work and the role it plays in finding our village: for some of us, work becomes our village, or a part of it.  I met a lot of great people at work, and I've stayed friends/friendly with some of them. But there are barriers to cultivating friendships at work, too. I know a lot of the younger people in my office liked to go out together after work (especially on a Thursday night, for some reason)  -- I did too, when I was in my 20s and we lived in the city. But when you get older, your priorities change -- even if you don't have kids tying you down. You don't recover from a night out at the bar as quickly ;)  you start to value your sleep, and you have a husband (if not kids) waiting for you at home.

Also, this probably wouldn't be as much of an issue in a smaller community, but the people I worked with commuted to our downtown office from all over a huge metropolitan area. Distance & commuting time -- not to mention the need to adhere to train, subway & bus schedules -- can certainly be barriers to after-work socializing, and forming and maintaining out-of-office friendships. After a long day of work (8.5 hours including lunch, plus another two hours or so commuting, round trip), I often just wanted to go home.  (Especially on a weeknight -- since I had to get up at 5 a.m. the next morning & do it all again...!)

3. The courage it requires to reach out to another woman

Especially "in real life,"  even if that person has also experienced loss &/or infertility. Sometimes, it's easier to reach out to other women in similar situations online.

4. The feeling that the women around you already have a village in place

Thinking of that exclusive mommy club again. ;)  Although feelings don't necessarily equal reality. There are more women out there looking for villages, or new people for their village, than we might think.

5. A fragmented village

I have lots of different people from different parts of my life and places that I've lived, some that I rely on more than others, sometimes for different things. They don't necessarily know or know about each other, or about the different parts of my life beyond the part I shared with them. (This was one reason I was very leery to join Facebook at first -- I wasn't sure I wanted all these different parts of my life coming together in one place. I am sure some of my Facebook friends, have been surprised at some of the things they've learned about me there...!)  

*** *** *** 

6 Tips to help you build your village 

I think these tips from the article can apply to any village-building effort, not just if you're a mom. 

1. First, believe that you don’t have to do motherhood adoption/loss/infertility (or anything else)  on your own. 

There are people who are going through the same thing you are (both in "real life" and certainly online) who are also looking to build their villages and find support... and who are willing to support you, too. Start looking for them.  

2. Next, get comfortable (ironically) with vulnerability. 

"Vulnerability allows us to take friendships to a much more meaningful level, and in turn we find ourselves feeling happier and more comfortable in our own skin because of the authenticity we’ve developed in the safety of close relationships," the article says. 
If anyone knows about vulnerability, I think it's ALIers. :)  Infertility & loss are pretty isolating, lonely, emotion-laden experiences. Our hearts are raw, broken, tender.  If there's one thing that helps us survive, it's giving voice to our truth -- being honest, expressing our feelings fully and honestly (by talking about them, or at least writing them out) -- and to know that others are listening.  Not necessarily that they have answers for us. Sometimes the mere act of voicing what's in our hearts -- and having someone pay attention -- is comfort enough.   

3. Watch for women you can bring in.

"A village gets stronger with numbers. If you already have a support network, keep your eyes open for women... who might need what you can offer. Be a people connector."

We're everywhere -- even if we're not always upfront about it. 

4. Keep working on YOU.

"Your vibe attracts your tribe." 

5. Ask for help, and accept it when it’s offered. 

So often, the people around us don't know we're hurting. It's hard to open ourselves up and admit we need help. Sometimes it leads to more hurt (clueless friends & relatives who don't understand) -- but sometimes it can lead to new understanding & new, stronger connections. 

6. Offer YOUR help. 

"Being willing to help others—to be their village—is the biggest key to creating one."  Share what you've learned, comment on others' posts.  

What do you think?  Did the translation to the ALI world work here? What would you add?

*** *** *** 

Reading the post got me thinking (not for the first time...!)  about my personal "village" and how it applied to my own life, post Katie, post-infertility.    

Immediately after losing Katie (in August 1998), I found myself reading obsessively about pregnancy loss -- why it happens, what I could do to prevent it from happening again, and what I could do to help myself recover from such a horrible blow. Several older women in my life who had lost babies years ago -- dh's aunts, my best friend's mother -- called & told me it had happened to them too. Most of them told me "you'll have another baby,"  which I suppose is what they'd been told (and for them, it did happen, so why wouldn't they believe otherwise?). Most of the women my own age that I knew had not experienced such a loss, it seemed.  I was floored -- and so touched -- when a former coworker now living in the States called me out of the blue (after reading the mass email I'd sent out) and told me about her own miscarriage.  

The package the hospital sent home with me included some information on local support groups. Even in a city as big as Toronto, it was hard to find support: the hospital's own onsite group no longer existed (!), another wanted me to come to their midtown office for an interview (!) & then wait until they had enough people to form a group that would last for a certain number of weeks & then send us on our way.  Finally, the hospital social worker I was dealing with told me about another group where she was a board member.  I went to one meeting by myself;  dh joined me for the next one, and we stayed there for the next 10+ years -- first as clients and then as facilitators. Finding our tribe, real-life people who lived nearby and were going through a similar experience, was a huge part of our healing. 

But the group only met once or twice a month. The time between meetings felt like an eternity sometimes.  That's when I discovered the power of the Internet. We'd bought our first computer two years earlier, in the fall of 1996.  Early on in my pregnancy, one of dh's coworkers had given him the name of a website she thought I'd like to check out. It was Parents Place (now defunct), with week by week pregnancy information & tips, as well as message boards for pregnant women and new mothers. There were, I realized, post-Katie, also message boards for pregnancy loss -- but I was a little hesitant about putting myself out there publicly like that. 

Eventually, I found a private e-mail list that seemed a little "safer" to me than public message boards, and joined that. It proved to be my daily lifeline for the next several years. I would rush home to check my email for the latest digests and emails from my newfound friends, and pour my heart out onscreen, both to the entire list and privately to several members I'd formed cyberfriendships with.  

The list was for women (& men) who had endured pregnancy loss and hoped to try again. As you might imagine, many of them also had infertility issues, and they were a source of invaluable information and encouragement as we ventured down the slippery slope of infertility testing and treatment. But as more & more of them got their "rainbow babies" (and sometimes a second, and a third...) -- and I did not -- my postings to the group began to taper off. It was becoming obvious that the "subsequent pregnancy" part of the title was not going to happen for us.  

I didn't post regularly on any infertility message boards while I was going through treatment (although I did check some out). (Blogs were not yet a "thing" -- that came a few years later.)  But after my final IUI failed early in the summer of 2001, I started hunting for resources for living without children.  There was not much out there -- and a lot of what I did find was for people who never wanted children. But I did find a very few message boards (often attached to infertility websites) devoted to the subject, with a somewhat active membership. In particular, I found a home on the Childless Living message board at iVillage. Sadly, it is long gone now -- but this week it will be 16 years (!) since I introduced myself there. I always consider that date as as the beginning of my childless/free life after infertility & loss. And I am still in touch with several of the women I "met" there (and I have met two of them "in real life") -- on a different private forum we created a few years later, and (later still) on Facebook. 

I don't think I discovered blogs until about 2006, and I started following a few of them regularly. Most of the ones I found in those early days no longer exist. But one in particular still does: Melissa's Stirrup Queens, which has long been a community hub for those of us dealing with adoption, loss & infertility. I think I started tentatively commenting on some of her posts -- particularly the sessions in The Lushary (which hasn't creaked opened its doors in a long time, but which still holds a fond place in my heart...! ;)  ) -- sometime in 2007. Through her blogroll, I discovered Pamela's original Coming2Terms blog, which eventually morphed into Silent Sorority.

And so, with Pamela's example in front of me and Mel's encouragement (and to take part in her Barren B*tches Book Tour -- which was, at the time, getting ready to discuss Margaret Atwood's "The Handmaid's Tale" -- plus ca change...!), I decided to start my own blog. This fall, it will be 10 years (!!) since I hit "publish" on that very first post.  While many of the bloggers I used to follow (sadly) no longer write, I'm so very happy (& proud) that the childless-not-by-choice neighbourhood of our ALI village has grown by leaps & bounds in recent years!  

I know I've told this story before (and I'll probably tell it again & again) -- but I felt compelled to tell it again now... mostly because I'm so grateful to the Internet and to blogging for giving me hope, empathy and friendship at a time in my life when I really, really needed it (and found it hard to come by in my offline life).   
Thank you all for being part of my village!  :)  

Monday, May 4, 2009

Book Shower: "So Close" by Tertia Albertyn


It's an infertile booklover's paradise out there right now, with new books from our very own ALI blogging Den Mother/Stirrup Queen Melissa, as well as Pamela Jeanne, hitting the shelves this month. A little earlier this year, however, another blogger's book finally became available to us in North America -- "So Close" by Tertia Albertyn of South Africa. Mel is hosting a "book shower" for Tertia today on her blog -- and this was one shower that I was happy to attend!

I first encountered Tertia some years ago on an Internet message board for IVF "vets." I mostly lurked there, as (having never done even one IVF), I did not think I met their qualifications to post as a "vet." However, having struggled to become pregnant (naturally), lost a baby to stillbirth, suffered through the indignities of the infertility workup, and endured several rounds of Clomid, followed by three IUIs with injectable drugs before almost cracking under the strain and finally making the difficult decision to live childless/free, I most certainly could relate to their anti-baby-dust mindset and their need to vent at the world from time to time -- particularly their often jaw-dropping tales of mistreatment by the oblivious fertile world.

Tertia was among the most vivid personalities on the board. Her posts -- like her book -- crackled with irreverent humour, blunt honesty, justifiable rage and colourful language. When I first began exploring the world of infertility blogs a couple of year ago, hers was one of the first blogs I discovered & bookmarked. Her descriptions of the ups and downs of fertility treatment are bang on.

I knew that Tertia eventually succeeded in her quest to have a family -- but there was much that I didn't know about how she got there. Suffice to say that Tertia most definitely qualifies for the title of "veteran." You name it, she's probably been through it (& then some) -- including 9 (!!) IVFs & several lost babies before the birth of her twins, Adam & Kate. (If you follow her blog, you'll know that she is currently due any day now with her third baby.) It's an amazing story that deserves to be read, not only by infertiles but by anyone wanting to know why we put ourselves through this, and where the strength to keep on trying comes from.

Mel has asked each of us attending Tertia's shower to answer one question from a list that she circulated. Here's the one I picked:

The title for the book as well as the title of Tertia's blog comes up on page 97 when she explains that she can't give up because she's so close. Um...I actually just wanted to throw this out there in case someone wants to run with the idea of being "so close."

I'll run with it! ; )

Unlike Tertia, I did eventually "give up"... and while my infertility & loss resume is far shorter than hers (the closest I came to parenthood was my one & only, naturally achieved pregnancy, which ended in stillbirth at six months) -- I too had the lingering feeling that I had come so close, so very close, to having the baby I so desperately wanted.

Back in the late 1990s/early 2000s, I was a member of an e-mail forum for women who had lost pregnancies & were contemplating or actively trying for a subsequent pregnancy. That's where I met Julia S., as well as another author (and now blogger), Ann Douglas.

When Ann began writing her book "Trying Again," published in 2000, she asked the members of our forum to be part of her "parent panel" -- which involved answering a series of detailed questionnaires about our experiences with pregnancy loss and trying again. I was happy to participate, & thrilled to recognize myself in the pages of her book. This is one of the quotes Ann selected for her book that came from me (on page 144, in a section dealing with feelings of inadequacy and that your body has betrayed you)(I hadn't looked at it for a long time, & wow, talk about (a) topical for this post & (b) prophetic...!):

"My body betrayed me when it failed to sustain my baby. Now it's failing me again by not giving me another chance at pregnancy. I am very afraid that Katie was my one shot at motherhood and I blew it. What an awful feeling to be so close [emphasis mine here] to something you've wanted for so long, only to have it snatched away, with no reassurances that you'll ever have anything like it again. With every passing month, I feel my hope of having a baby slip further and further from my grasp."

Like Tertia, coming "so close" to holding my baby in my arms drove me onward (as my biological clock ticked ever-louder), first to charting my temperatures, then to infertility testing and treatment. But (as I said in the book) as time went on, I began to realize that I wasn't getting any closer to grabbing the brass ring. Instead, I could feel it slowly slipping from my desperate grasp -- drifting further and further away -- as my eggs aged, my bank account dwindled and, frighteningly, my sanity began slipping away too.

Yes, I was so close -- close, but no cigar, as the old saying goes (and how ironic -- given the old tradition of passing out cigars on the birth of a new baby...!)(Laura Secord actually has (or at least, they used to have) milk chocolate cigars, wrapped in pretty pink or blue foil & sold by the box, that you can distribute in lieu of tobacco. I can't tell you how often I used to eye those cigars in the store, thinking, "Some day... some day...")

I've moved on in a different direction with my life these past eight years -- down a road less travelled. I'm not always sure of where I'm going or how I'm going to get there... although the journey to date has been interesting, to say the least! I've found new interests and new adventures to fill my days.

But that tantalizing feeling of coming "so close" to fulfilling that other dream will probably haunt me for the rest of my time here on this earth.

How close do you/did you feel to achieving your family goals? Do you think there will ever come a time when you decide to stop treatment? If that time has already come, how did you know & what has happened since then?

Now, hop on over to Melissa's blog to find out who else is attending the party -- & then visit their blogs to find out what gifts/insights they've brought!

Thursday, October 23, 2008

September/October 1998: Home alone (warning: another long one...)

September 1998 found me home alone and still trying to make sense of what had just happened to me. My parents had gone back home, & dh had gone back to work after three weeks off. His boss told him they'd give him a week as bereavement leave -- the maximum in the policy is three days -- but the two weeks we had originally booked off as vacation would still count as vacation. Some "vacation," huh??

As for me, I had a telephone chat with my office administrator about my leave. ("It's been hard, Elaine," I said. "It's a tragedy, Lori," she said firmly.) She told me that, because my baby was past 19 weeks gestation, I was entitled to the same 17-week leave funded by Employment Insurance (which, at that time, I believe was around half of your regular salary, but capped at a certain level -- around $400 a week, I think??) -- the same maternity leave benefits that any new mother in Canada got at the time. (However, I would not be eligible for the period of unpaid leave that usually followed. At the time the combined leave amounted to about nine months; since then, it's been extended to a full year. Fathers can share part of the leave.)

I told her that a handout in the hospital package had mentioned the EI benefits, and had also mentioned that I might be entitled to disability benefits. "Oh yes," she said, "and because of your long service with the company, I think you'd be entitled to up to 26 weeks on short-term disability at full salary."

26 weeks!! I told her I didn't think I'd need 26 weeks, but it was nice to know that I could take the time I needed and not have to worry about money. I told her that I would be seeing Dr. Ob-gyn for my post-partum checkup on Friday, Sept. 25th, and dh could pick up any forms that the dr needed to sign.

As the date of my post-partum checkup drew closer, & no forms had materialized, I gave her a call. "I'm going next week, and I can bring along any forms you need signed," I said.

"Oh Lori," she said. "I've been discussing your case with HR, and they won't let you take disability leave. You HAVE to take the 17-week maternity leave with EI benefits. There was a grey area in the policy... they're going to clarify it now, but they won't give you the benefit of the doubt."

She started explaining that this would mean taking me off the payroll, & backtracking for the time that I'd already been off work. Which would mean that I would return to work & still only be getting EI benefits to make up for the time I'd already been off work on full salary.

My head swam. I knew that, had I had the baby, I would have been on EI benefits by November -- but this was September, and I didn't HAVE my baby -- we had a funeral to pay for (plus, unexpectedly, a new furnace) -- & to suddenly have my income yanked out from underneath me, along with everything else I was dealing with, was profoundly upsetting.

I didn't want to go back to work right away. But -- if I took the full 17 weeks, dating back from the date of my loss, I'd have to return to work... right around my late November due date, and just in time for Christmas. Greeeeaaaat. I started crying.

"Leave it with me, I'll get back to you," she finally said.

A few days later, she called me back. "How long were you thinking of staying off work?" she asked. I said I wasn't prepared to return to work until I had clearance from Dr. Ob-gyn at my post-partum checkup on Sept. 25. Maybe after (Canadian) Thanksgiving in mid-October?

She told me the VP had a proposal for me: he was willing to keep me on the payroll at full salary -- call it a "special leave of absence" -- so long as I was willing to return to work after Thanksgiving (conveniently for the office, the beginning of our busy year-end season). If I felt I needed longer than that, we'd have to work something else out -- i.e., back to the EI maternity leave.

I thought it over & agreed, contingent on my ob-gyn's approval (he would have to provide me with a note explaining my absence). My leave now had a firm end date. I wasn't anxious to return to work, but I realized it WAS generous of the VP to give me this option.

At the same time, I was more than a little ticked off (& still am, when I think about it). I work for a federally regulated company, one of the largest in Canada, considered one of the country's top employers. Maternity leave laws have been around in Canada since at least the early-mid 1980s. And more than 70% of my company's employees are women, many of them in their prime childbearing years. You CANNOT tell me that mine was the first stillbirth they had ever had to deal with!!!

One day in September, my doorbell rang & a delivery man handed me a bulky package that clearly came from my office. "They're sending me WORK??!" I thought in disbelief. Actually, no. Inside was a sympathy card and a selection of current books they thought I might enjoy reading while I was off (in lieu of flowers). I was touched -- they knew me well!

I was, however, just a tad mystified/annoyed that the card was simply signed with the name of my department. When co-workers' parents had passed away, we'd always circulated a card for everyone to sign (along with an envelope for contributions). It seemed like just another example of the silence and avoidance surrounding the whole subject of pregnancy loss that I was beginning to experience.

Some time later, my co-worker/office best friend was away on vacation, & I was asked to find a document on her computer. In looking for the right file, I stumbled onto the note that was sent around, informing everyone of "the sad loss of the baby Lori & her husband Sam were expecting" and asking for donations to cover the cost of the books. There was a circulation list attached. I printed off the note and the list, so that I'd at least have a record of who my co-workers were at that time, & put it with the rest of Katie's things.

*** *** *** *** ***

People asked me what I was did to pass the time while I was at home (like I was on some kind of holiday). I find I never lack for things to do on the rare days when I'm home by myself. I don't drive, & although I could have taken a bus to the local mall, I preferred to stay close to home. I did try to get out of the house for a walk every day that the weather allowed. We have a strip plaza a short walk away, with a supermarket where I could pick up groceries, & I would take the long way around to get some extra exercise.

I started writing thank you notes to everyone who had sent us flowers & cards. I read. I cleaned. I picked plums from our loaded-down plum tree (fruitful in a way it had never been before, and never would be again -- unlike me...) and baked plum crisp and plum cake, and (non-plum) cookies and muffins.

I supervised the installation of a new bathroom ventilating fan, a new furnace, and had the carpets steam cleaned. I surfed the Internet, looking for reasons why this might have happened. I ordered some books about pregnancy loss from Amazon, including the classics "Empty Cradle, Broken Heart" and "A Silent Sorrow," and began devouring them as soon as the box landed on my doorstep.

I looked at a few message boards, but was hesitant to put myself "out there" on the Internet, which was still relatively new to me. One day, I found a site for a private e-mail list for women pregnant after loss, or planning or contemplating another pregnancy after a loss. This sounded right up my alley, & the closed nature of the list appealed to my worries about privacy. Long before blogs, the list became my daily lifeline.

I called the (real life) support group whose pamphlet had been in the hospital package. They explained that they had a monthly drop in night for newly bereaved parents, but they needed to fill a quota before they could start an actual weekly group. Once they had enough people, we would go through an intense few weeks together, talking & learning. And then that would be it. But first, they wanted me to come to their office for an interview. (!) Their office was in midtown in the city, which would mean a 40-minute train ride into the city, a 20-30 minute subway ride and a bus ride. I thanked them for the information and said I'd get back to them.

Then I called the social worker who had been so kind to us following our loss, to ask about another group mentioned in the literature, one that met weekly at the hospital. "Unfortunately, that group has been discontinued," she said (then why include the pamphlet in the package??), but then she added, "but I do know of one other group -- I'm on their board of directors." She gave me a number to call.

That's how I found our support group. I attended my first meeting on Thursday, Sept. 17th, at a church a few miles away from where we lived Dh had to study for an exam he was writing on the Saturday (at least, that was his excuse, lol), but drove me there & picked me up again. He did come with me to the next meeting, Thursday, Oct. 1st. And we've been there ever since...!

We returned to the cemetery office, and ordered a plaque for our daughter's niche. It was up when we went to visit on Sunday, Oct. 4th.

*** *** *** *** ***

Sometimes days would pass before I talked to another adult besides dh. One of dh's cousins dropped by one day with flowers. She didn't stay very long, using her sulky toddler as an excuse to leave quickly.

A few days later, on the Labour Day weekend, we went to a local waterpark with her, another cousin, dh's brother & their families. It was a hot, humid day, and we sat on the cement by the pool, watching as the kids splashed around & had a ball. I was still wearing maternity clothes at this point, since not much else fit me, & I have a photo of myself, all dressed in black, as if in mourning. We rode in his cousin's van, and drove past the cemetery where our daughter's ashes were interred. I pointed this out -- I think someone may have emitted a polite "Oh?" & that was that.

The next day, we went to another aunt's house for lunch. She handed me some towels she had bought for me (!), hugged me & said, "We won't talk about it anymore." (And she never has.) She's the soul of generosity, but her response is typical of dh's family, particularly those in the older generation.

Her younger daughter, newly pregnant with her second baby (born in April 1999, six months after Katie's November due date), hugged me & simply said, "I don't know what to say." "There's not much you CAN say," I remember saying. I talked a little bit about what had happened over coffee, as she & her sister listened with sad expressions on their faces.

I didn't see much of cousin/neighbour's wife -- a stay-at-home mom to two young girls, who had been so excited about our baby's impending arrival & had assured me she would be over "every day" to help me out. She invited me over for lunch, & I wound up spending most of the day with her on Wednesday, Sept. 16th. Another day, I walked over there with some plums from our tree. That was about it, between our Labour Day excursion to the waterpark and Thanksgiving. It was the beginning of a gradual disengagement between us, although we didn't realize it at the time...

I started getting calls. A former co-worker, now living in Cleveland, who had received the mass e-mail I had sent out (& had had a miscarriage herself) surprised me with a call. My (older, childless) best friend/coworker from the office left me a message one day. She started out brightly, saying she just wanted to see how I was doing. But her voice began to break as she added, "I was absolutely devastated when I came back from vacation & they told me what had happened." She came out to visit me, bearing (more) flowers. We sat on my front porch with iced tea & I told her the story of what had happened, as she wiped tears from her eyes. (She's always been there to listen & even though she has been retired for nearly two years now, I still miss her every day!)

Another friend & former coworker called one day. "Hey, I tried calling you at work. What are you doing at home?" "Well...I lost the baby," I said flatly. "Oh!" she said. I briefly outlined what had happened. And then she began to babble. I realize I caught her totally off guard... but one of the things she said has forever stuck in my mind as one of the dumber things anyone said to me, post-loss:

"Well, you know, Lori," she said, "you've had a pretty easy life up until now." I know I recognized right off the bat that this was a pretty odd thing to say, and I found it harder & harder to keep up my end of the conversation. After we hung up, I mulled the conversation over & over in my head. This friend hadn't had a very easy time of it in recent years -- her husband had left her, she was having difficulty dealing with a high-spirited teenaged daughter. I'd always been there to listen & encourage her. Basically, I felt like I'd been told that I'd had a pretty cushy life (in comparison to hers), so suck it up. And was I imagining it, or did I perhaps detect a faint note of glee, that I was finally sharing some of her pain -- perhaps even gotten what I deserved?

We have stayed in touch -- but needless to say, we have drifted apart & only speak to each other a handful of times during the year.

*** *** *** *** ***

Friday, September 25th -- my post-partum checkup. It was originally scheduled for 1:15 p.m. (I knew he saw all his pregnant patients in the morning), but the day before, his assistant called to ask if I could come at 11:30 instead. I also had a 10:30 a.m. appointment with my family doctor to have my postpartum thyroid levels checked.

I took the bus to the train station in time for the 9 a.m. train. As the bus pulled up, I noticed there were hordes and hordes of schoolchildren lining the platforms. What the heck was going on?? Then I remembered: this was the day Nelson Mandela was making a special appearance at the SkyDome (now called the Rogers Centre) in Toronto, to be attended by some 50,000 area schoolchildren. Needless to say, I did not relish the thought of sharing a train loaded with rambunctious grade schoolers, particularly this day of all days. Fortunately, they had actually commissioned special trains for the kids, so the regular train was blessedly quiet.

There were still a few pregnant women in the hallway when I arrived. Dr. Ob-gyn examined me , answered my questions, agreed I could return to work anytime I wanted, and provided me with the required note. Then I went to the social worker's office to say hello and thanks to her. After that, I went to a Kinko's shop across the street. I had found & devoured Toni Weschler's "Taking Charge of Your Fertility" & tore the page with the prototype chart out of the back to be enlarged & copied. Dr. Ob-gyn recommended we wait three full cycles, but after that, I intended to waste no time. It had taken us 2.5 years to get pregnant, doing absolutely nothing special. I figured I could cut that time considerably with a little targeted effort on our part. (Oh, such innocence!)

*** *** *** *** ***

That Sunday, Sept. 27th, dh & I went to church at the Anglican parish we had joined, in anticipation of starting a family. Our minister was a huge proponent of the Alpha program, and our special guest speaker was a young British pastor & his wife, who had helped to found the Alpha program for youth. They were en route to attend an Alpha conference elsewhere in Canada. His wife had brought a guitar with her & sang a few of her own compositions, in a beautiful, soaring voice.

At the end of the service, the young pastor stepped forward. In preparation for their trip, he said, his wife had been praying and had been entrusted with "words of knowledge" (something I had never heard of in my Anglican upbringing) -- images, visions, of people who needed prayer. There was a young woman, looking out a window at a field. A young boy with a tall hat.

"And there's a young woman with short dark hair. She's holding her stomach, or her womb. We can't tell if she's pregnant, or wants to be pregnant, but there's a lot of fear and sadness there."

If any of these images "spoke" to you, he added, please come see us after the service.

The choir stood, sang the last hymn, and processed out. People got up and started leaving. While I sat, frozen in my pew, thunderstruck. "What's the matter?" asked dh.

"It's me! I know it's me!" I whispered back to him. "I have to tell them!"

Dh gave me a weird "look" & said he would wait for me in the car.

I made my way to the front and eventually managed to catch the young woman's eye. "I'm your pregnant woman," I said. "I lost my baby seven weeks ago."

The woman told me that she too had lost a pregnancy, a miscarriage. "I'm so glad you came forward -- I could see this woman so clearly and I was so worried about her," she said. She held one of my hands & put her other hand over my now un-pregnant stomach and, as tears poured down both of our faces, she prayed for me, for my baby, for healing, for the knowledge of God's love to ease my pain. While her husband stood beside us, also praying with us, but also clearly uncomfortable, to my amusement. Even ministers could be typical men, I thought.

She gave me a hug & I went out to the car where dh was waiting. I've never been a huge believer in spirits and such... and in recent years, I've sometimes wondered whether someone from the parish (the minister, perhaps) had put them up to it, thinking I needed prayer. Whatever. Someone -- or "Someone" -- obviously felt that I needed some comfort, and sent it to me in a very unforgettable way. I have no idea whatever happened to that couple, but I hope she eventually got pregnant again and had a healthy baby.

*** *** *** *** ***

(Canadian) Thanksgiving weekend: my last weekend before heading back to work. My mom & sister went to Minnesota to visit my grandparents, & I talked to them there. BIL & his family came over on Saturday and we took a drive in the country, northeast of where we live. Cousin/neighbour had us over for dinner (cornish hen, instead of turkey) on the Sunday, Oct. 11th. The weather was clear, sunny and gorgeous, and the fall colours were at their peak.

Tuesday, Oct. 13th: 5 a.m. sure comes early when you've been used to sleeping in for the past 10 weeks or so. The closer I got to my office, the more dread I felt. The thought of walking in through the main door of my department gave me pause. I knew I couldn't do it. There was, however, another, less well used entrance, right outside the space I shared with my coworker/office best friend, so I decided to go in through that.

I'm normally one of the first people in the office, but today, she was already there. "Welcome back," she said, rising out of her chair.

I put down my briefcase and burst into tears. She hugged me. As the day went on, people dropped by my office to say hello. Some of the women asked questions about what had happened. Most of the guys, looking uncomfortable, just said, "Glad to have you back" & left as quickly as they could, lol.

I was prepared for my coworkers. They all knew what had happened. What I wasn't really prepared for was everyone else. I had worked for this company for 12 years, and in this building for 10. I knew a lot of people from other departments, including the one just down the hall from us. I saw a lot of the same people day in & day out -- the girls at the Second Cup outlet where I got tea every morning, the food court places I went to eat, the clerks at the newsstand where I'd buy magazines and candy. These people knew I'd been pregnant, saw my expanding belly. Then I was gone, & now I was back again, not pregnant. They just assumed I'd had the baby and now I was back. "What did you have, a boy or girl?" they'd ask with a huge grin on their face. And then I'd have to tell them, and watch the grin turn to an expression of disbelief and horror. I could only handle so many of those encounters in a day, & would go out of my to avoid people if I could sense one in the making.

Everyone told me to take it easy. Of course, it didn't take long for them to start filling my inbox as though I'd never been gone. Back to work, for the most part equals "back to normal" in most people's minds.

*** *** *** *** ***

Thursday, October 15th, my third day back at work. I was feeling crampy and PMS-y.

My telephone rang at the office.

It was my mother.

My grandfather was dead. Had slipped away peacefully while napping, as my grandmother read beside him, oblivious. He was 86 years old. I was 37. How many 37 year olds do you know who still have a complete set of grandparents?? I knew he wasn't going to live forever -- but why now???

I had always dreamed that my children would know my grandparents. As both my grandparents & I got older, I modified the dream. My kids might not remember my grandparents, but I could at least have the thrill of bringing great-grandchildren to see them. (Not their first great-grandchildren -- by the time my grandfather died, my two cousins each had a boy & a girl, & my one cousin was also a stepfather.) Now that dream, too, was shattered.

I called dh & he came up to my office & held me as I sobbed. First a coworker came upon us, & then my boss. "Her grandfather died," my coworker said, with a "poor kid, what next??" look on her face.

I went home. And started packing, & calling to find out about flights. I booked myself on a flight leaving the next morning. My dad & sister met me and together, we drove down to the small northwestern Minnesota town where my grandparents had lived, & where my mother already was. The cost (on top of the funeral, the new furnace, etc.) was horrendous, even with the special bereavement fare, but I didn't care. I wanted to be with my family. While my loss was not the particular focus (although many people gave me their condolences), it just felt good to be with family and in a place where I could wallow freely & feel buoyed by the mutual grief and the love & care of family & friends.

My grandmother, 84, who had mild dementia, was bewildered by this turn of events. She kept asking where my grandfather was and, when reminded that he had died, would ask how long they'd been married. My mother brought her back to the apartment from the nursing home to stay while we were there, & I got to share a bed with her. We crawled into bed & looked at each other & she chuckled and said, "How many years has it been since we did this?" Too long, Grandma, too long.

I did not get to see my grandfather again. They sent his body to be cremated, as he had wished. My mother, grandmother, uncle & his wife saw him, though. My mom told me she'd had him dressed in one of his plaid shirts, suspenders and the comfortable old grey cardigan sweater he wore constantly. "He looked good," my uncle told me. "He looked at peace."

While we were there, my mother's cousin (my godmother) got the shocking news that her best friend from growing up had also just passed away. Her funeral was held a few days after my grandfather's. Why is it these things happen all at once??

The ashes weren't back in time for the funeral on Oct. 19th, at the beautiful little Episcopal church my grandfather had attended faithfully for most of his life. Afterwards, people started drifting back to their homes and work. I stayed with my mother. Grandpa's ashes arrived on Wednesday -- in the mail, no less!! "Here's Grandpa, home for the last time," my mother said as she came into the apartment from the post office, carrying the box and wiping her eyes.

"Oh, & we don't even have his chair for him!" I said. We'd taken his easy chair up to the nursing home for my grandmother the day before.

In the afternoon, Mom & I took Grandpa's ashes with us, and drove, in a caravan with my uncle & his wife, my grandmother and a few of my mother's cousins, up to the site of the farm where my grandfather had been raised, a mile or two south of the Canadian border (and also close to the town, on the Canadian side, where I had been born, & where my dad's family had lived). It was a beautiful clear, sunny, autumn day. I stood there and looked around me, at the land my ancestors had come to in the late 1870s. In a lifetime of moving around from one place to another, this area was always the place I had returned to. More than anywhere else on earth, this was HOME.

My mother had brought Grandpa's mother's Book of Common Prayer, & we stood in a circle, near the site where the house had been, and read the prayers from it. Then we each took a handful of the ashes and scattered them to the winds. "I love you, Grandpa," I said as I released mine. Then we went to the cemetery, a short distance away, & scattered some more ashes on the graves of Grandpa's parents & grandparents. Mom took the rest back to the funeral home, and when my grandmother died on October 7th, 1999 -- almost a year to the day later -- they were placed inside her casket and buried along with her. Together forever.

At my grandmother's funeral on Oct. 11th, 1999 -- Thanksgiving Monday -- my dad's older sister, my other godmother, told me her husband was not well. He'd been mysteriously losing weight. Four days later, on Friday the 15th, I was at my parents' home and answered the phone when her oldest son, my cousin -- a big, tough city cop less than a year older than me -- called, his voice choked with tears. His dad had just been diagnosed with pancreatic cancer.

I returned home the next day, Saturday. On Sunday morning, my dad called, disbelief in his voice. My uncle had died that morning in bed, just two days after his diagnosis. He was 65 years old and had only just retired within the past year. His funeral was held October 20th -- his wife's birthday (!!), AND the same day my mother went into the hospital for a long-planned hysterectomy. Dad took her in, then went to the funeral while my sister stayed with her.

Do you see why October is a month that tends to fill me with dread & melancholy??

Back to 1998: I flew back home on Thursday, and went back to work the following Monday, Oct. 26th. Technically, I knew I was only "entitled" to three bereavement days. I had taken six. I overheard one of the administrative assistants asking my boss how she should "count" my absence. "Just let it go," my boss said. And I never heard about it again. Small mercies.

Thursday, February 21, 2008

A "telling" post

Over at the Stirrup Queens site, Mel has asked us to tell her about... telling:

"...the topic I'm posing today is telling people that you're infertile, doing treatments, using donor gametes, using surrogacy or adopting..
"Some people go through treatments privately, without revealing to any friends or family members what they are experiencing. Others choose to tell a select few and still others tell everyone about their E2 levels, including the random woman buying Doritos in line behind them at the supermarket.
"There are also people we weigh and decided to not tell and other people who are told despite the fact that we are trying to keep the journey private. Everyone has personal, unique reason for why they do or don't tell.
"If you have told anyone, how did you broach the conversation? Did you wait for an opening or create it yourself (and if you created it, how)? Do you tell more than one person at a time or do you like to find private moments where you can talk about it one-on-one? Do you prefer to tell people in a written medium--email, letter--or face-to-face? Why did you tell them and how did they react? Were you disappointed or grateful, and did the telling make a difference in your life the day after and the day after that (in other words, did the telling do anything to change your daily existence either positively or negatively)?"

** ** ** ** ** **

I've always been a very private person, especially when it comes to personal matters. When all the other little girls at school got together to talk about boys -- & who they liked -- I would keep my mouth resolutely shut. OK, my very best friend probably knew which guy I secretly fancied, but I would never take part in the general giggly, gossipy give & take of who-likes-whom. I knew (from experience, & watching others) that the minute I confessed, it would be all over the schoolyard, & my life would be hell for the next God-knows-how-long.

Likewise, dh & I knew we were getting married, long before we actually told people of our plans. We both still had to finish school & find jobs, etc., & I knew that the minute we started telling people we were engaged, a big white tulle cloud would descend upon us, and that would be all anyone would want to talk about.

After we got married, I braced myself for the inevitable questions, hints & jokes about pregnancy & babies. When dh & I returned from our honeymoon, one of his aunts had a "welcome home" party for us to celebrate our wedding (since most of his relatives did not travel to attend). I was absolutely stunned (& silently furious) when they brought out a cake with one blue, one pink and one small yellow candle on it, to much laughter & nudging -- it was starting already!

Then as now, I identified myself as a feminist. I knew that I was so much more than my ability to reproduce. I refused to be painted into a traditional corner so quickly, & resented people trying to do so. I believed (then and now) that when, how, why and even whether we decided to have children was a strictly private matter between dh & myself. Questions & hints about our family plans would be dismissed with an evasive, "Oh... someday... eventually... one of these days, maybe..."

As the years went by & there were no babies, the questions & hints began to dwindle. We finally decided to take the ttc plunge after being married for 10 years -- by which time I think most people had written us off in the babymaking department, perhaps assuming that we didn't want children. I've known some people who announce excitedly to all & sundry, "We're trying!" No way, not me.

So there was a lot of surprise & delight among our family members when we finally announced our pregnancy in the spring of 1998. FIL even confessed, "I didn't want to ask..."

After our daughter was stillborn, I got murmured comments along the lines of "You'll have another baby someday" & "You ARE trying again, aren't you?" Never mind that I was in my late 30s & this pregnancy took 2.5 years of trying (13, if you thought we started trying the night of the wedding). I would generally answer "I hope so," because I knew another pregnancy (let alone a successful one) was definitely not a sure thing.

So when we began infertility testing and then treatment, we kept it to ourselves. Why? Well, as I've already described, it's just not in my nature to blab about intensely personal matters to all & sundry. And there's certainly no subject more intensely personal than trying to conceive. And I was having enough trouble coping emotionally as it was. I felt I couldn't handle the weight of other people's excitement, expectations, disappointments & sympathy/pity on top of my own feelings of stress, hope, disappointment, failure...

And GUILT. Guilt for waiting as long as we did to ttc. Guilt for being so smugly confident that of course WE would never be one of those couples I read about in the women's magazines -- infertility was for women with irregular periods & sexually transmitted diseases (which of course they got from having multiple previous sexual partners, unlike moi...). Guilt, guilt, guilt for not providing my parents with a (living) grandchild to spoil long before this (particularly when I knew my only sister was childfree by choice and it was all up to me). Guilt for not making my own fabulous grandparents great-grandparents, even though they both hung around until I was 37 years old (how many 37-year-olds are lucky enough to still have a complete set of grandparents living?). Guilt that any children I ever did manage to have would never know personally just what wonderful people they were. Guilt that my dh would never get to be the fabulous daddy to a (living) child that I knew he would be.

I did have two friends at work that I confided in (one of them with her own fertility issues), an e-mail list for ttc & subsequent pregnancy after a loss (then, as now, I somehow find it easier to spill my guts to total strangers on the Internet...!), and people in our "real-life" pregnancy loss support group, many of whom were also struggling with infertility issues.

Admitting failure -- at something that just about everyone else took for granted (heck, at something that far too many people in my family had happen "to" them, as an "accident") -- to myself was one thing. Admitting such failure to others... well, you can imagine. I'd always succeeded in just about everything else in my life that I had done (well, outside of phys ed class & organized recess sports, where I was a total, utter failure). For the most part, school came easily to me. I landed jobs fairly easily. I just took it for granted that if I applied myself & worked hard, success would be mine. Infertility was a huge blow to my self-esteem & the capable, accomplished image of myself that I liked to project to others.

My dh encouraged me to tell my mother about our difficulties in getting pregnant again -- especially after she called one night (a few years after we'd stopped treatments, when I was in my early 40s), her voice full of excitement, to tell me about a neighbour's daughter who had just adopted the cutest baby through an agency in the city... "and I just thought I'd mention it to you..."

I got off the phone & cried for two hours. My mother was never one to hint too openly about her desire for grandchildren, especially after our loss (although I knew it was there), and her previous comments about adoption had always been tinged with ambivalence -- which probably contributed to my own ambivalence about it as an option for us.

"Well, you know, she's adopted," she would say, sotto voce, when an acquaintance was having problems with her teenaged daughter (something I heard her say more than once about more than one adopted child). "And she's mixed race. That's a lot of baggage to be carrying around." When a friend's marriage broke up, Mom wondered whether the stress of adopting twin boys -- who turned out to have behavioural issues, possibly related to fetal alcohol syndrome -- on top of the mixed-race girl they had previously adopted -- had contributed to the breakup of their marriage. If I adopted, would she be saying the same things to me, about me, about our adopted child (even though I knew she'd love that child to death)?

And now here she was, blatantly hinting that *I* should consider adoption!! I felt the weight of my mother's desire for a(nother) grandchild in that moment, & it nearly crushed me.

Several years after we finally abandoned treatment, I finally did tell my mother what we'd been through. We were home during the summer for a visit, and she & I went for a walk at dusk. We ran into someone she knew, with a cute little girl who was hopping with excitement about starting junior kindergarten in the fall. As we continued on our way, I found myself remarking that Katie would have been starting junior kindergarten that fall too. My mom said she knew, & we both got choked up. Then, hesitantly, my mother said, "Have you ever thought about adopting?"

"Oh Mom," I said, "I just don't think I have it in me. Not at this point in my life." She conceded that adoption was not for everyone.

But then I found myself adding, "But we did try, Mom, we really tried!" I told her everything. (Well, not everything. But a lot.) I said we hadn't tried IVF, but we had tried other things. I told her about the drugs & how they'd made me feel. About being poked & prodded and getting up at 4 a.m. to get to the clinic by 7, and then heading to the office for a full day of work.

I told her about the failures. I told her about the anxiety attacks I'd had, how I just couldn't continue living with the stress. I reminded her of the time she came to visit us in the spring of 2002. I had another major anxiety attack the night before she arrived, & had told her about that when she arrived (but not the whole story behind it all). She & I had planned a trip to explore Montreal together for a few days while she was here, & we'd had to cancel because I was just too unwell & afraid of being sick in a strange city.

She said, "I wish you'd told us. You shouldn't have had to go through all that by yourself," & I explained to her that I found it hard enough living with my own disappointment, let alone hers & Dad's -- knowing they would be waiting anxiously to hear the results of the latest cycle.

By then, we'd reached the corner of our street & were just standing there, talking & crying. We knew my dad & dh would be waiting inside the house to play cards. She told me she had to water the flowers in the garden, & to go on ahead & clean myself up. I managed to get past dh & dad (already dealing the cards) & upstairs to the bathroom to splash my swollen red eyes with cold water & compose myself before facing them, and she followed a few minutes later.

I still don't regret keeping my mouth shut while we were in treatment. But I'll admit that I felt an immense sense of relief at having finally come clean with my mother, after the fact.

Tuesday, November 27, 2007

Blog you, VERY much!

JJ at Reproductive Jeans has challenged other bloggers to share our blog's birth story & say THANKS to that blogger who inspired you.

I think I first became aware of blogging and its potential through Ann Douglas's The Mother of All Blogs. Ann is a prolific Canadian writer of books, magazine articles & Internet content, mostly on parenting-related topics, but also on issues of pregnancy loss, with which she has firsthand experience. She has also written on a broad range of other subjects ranging from curling to Canadian women. I first "met" Ann online shortly after the stillbirth of my daughter in 1998, in an e-mail support group we both belonged to called SPALS, and later met her in "real life" in conjunction with Perinatal Bereavement Services Ontario. I haven't encountered her in person recently, but enjoy keeping up with her doings via her blog.

I can't remember the first infertility blog I ever read, but in recent months, my list of favourite blog links has been growing. Every now & then, I will use Google Blog & search for terms like "childless," "childfree" and infertility. Although I've read many, many blogs that inspired me and made me feel less alone, Pamela Jeanne's wonderful blog, Coming2Terms, was one of the first that I read that truly spoke to me & my situation-- not only about my experiences with infertility, but about the life I'm living today, having moved beyond treatment without a baby in my arms. It made me realize (although not for the first time) how few voices there are out there in cyberspace providing this perspective and got me thinking that maybe I should add mine too. For the kick in the pants to actually do it, I must credit Melissa at Stirrup Queens. The book tours there seemed like just too much fun not to join. ; )
So to all of you out there, and especially Ann, PJ & Melissa, "blog you very much!"