From this morning's Globe & Mail. Boldfacing is mine for emphasis. Check out the comments… and try not to grind your teeth too much over the use of the term "implant," lol.
*** *** ***
Fertility treatments, older mothers leading to rise in premature births
CAROLINE ALPHONSO
From Friday's Globe and Mail
January 30, 2009 at 4:35 AM EST
More babies are being born prematurely because women are waiting longer to start their families and relying on fertility treatments that can lead to pregnancy complications, a new report indicates.
The rate of premature births climbed a staggering 25 per cent over the past decade, the Canadian Institute for Health Information said yesterday. The figure caught obstetricians and gynecologists by surprise.
In 2006-07, 8.1 per cent of babies in Canada - roughly 29,000 - were born preterm, meaning they were delivered before 37 weeks of gestation. In the early 1990s, such babies made up about 6.6 per cent of births, the report found.
Those in the practice of delivering babies were particularly troubled by the data because human life is fragile at an early stage, and premature babies who weigh very little are at risk for an array of complications, including blindness, deafness and cerebral palsy.
Mothers over 35 were 10 per cent more likely to deliver preterm, the study found. And the rate of preterm births among women having multiple babies was 17 times higher than for mothers delivering single babies. Increased use of fertility treatments has led to an explosion of multiple births.
Annie Janvier, a neonatologist at Montreal's McGill University Health Centre, said the blame lies mainly with "irresponsible" governments that don't encourage women to have families early, allow clinics to implant more than one embryo during an in vitro fertilization cycle, and don't finance fertility treatments. Using one embryo per cycle increases the chances a baby will be carried to term, but the high cost of treatment means some want to improve their odds by implanting multiple embryos.
"This is avoidable," Dr. Janvier said. "But infertility is really not seen as a health problem by our government. It's really too bad."
Laura Bergeron-Blais learned the hard way what it means to implant more than one embryo. She paid for three in vitro fertilization treatments over three years. She became pregnant with a boy and a girl after her second treatment, and after implanting "a lot of embryos."
She delivered prematurely 26 weeks later. Megan, weighing 710 grams, died an hour after birth. Logan, weighing 785 grams, died two months later.
"I wasn't aware of the high risk when it came to twins. I didn't understand that," Ms. Bergeron-Blais said from her home in Montreal. "Because we're paying for this ... we kind of get raped in our situation. We don't care what it takes, just get me pregnant. I put in [embryos] way beyond the norm and I got pregnant with twins."
Seeking to avoid another preterm birth, she had only one embryo implanted during her most recent treatment. But she suffered an ectopic pregnancy.
She and her husband are now looking into adoption.
Of the number of babies born prematurely due to multiple births and fertility treatments, she said: "The government has to step in and start controlling the situation before it gets completely out of hand."
Premature babies cost the health-care system seven to nine times more than full-term babies. A single preterm baby costs a hospital $9,233 compared with $1,050 for a full-term baby.
Jan Christilaw, an obstetrician-gynecologist and interim president of British Columbia Women's Hospital and Health Centre, said would-be parents and hospitals pay a heavy price, and governments should step in.
"We are not there in terms of having the best possible reproductive care," Dr. Christilaw said.
Friday, January 30, 2009
Oh, puh-leeeze!!!
Gimme a break...
Obama baby bump watch begins
Excerpt:
"The American public simply seems to crave "pregnancy porn" -- tabloid photos of celebrities humanized by stretch marks and weight gain -- and so we search for it everywhere... it's hard not to see this renewed pregnancy gossip as part of the "momification of Michelle," a desire to cast her as the star of our new domestic soap opera. Everyone's watching, whether she likes it or not."A good related article:
Anyone care to discuss?
Wednesday, January 28, 2009
It's all about being a mom...
(As if I needed any more reminders…)
Two items in this morning's Toronto Star had my eyes rolling, if not my blood boiling.
First, coverage of the federal government's budget yesterday. There were profiles of various "ordinary Canadians" & how the budget would affect them, & charts showing different family scenarios & incomes and how the budget would affect each. There were single people, one & two-income families with children, single mothers with children, retired couples…
Not one mention anywhere of how two-income couples without children -- like dh & me -- would be affected. (There rarely is.) I didn't see anything in The Globe & Mail or the National Post, either. Never mind that we are a large & fast-growing segment of the population. Or that before any couple has kids, they are a couple first.
Of course, we rarely get any breaks. Why should we? Two incomes, no kids -- we must be rolling in money, right?? We don't need any help. Right?
Then I was reading Rosie DiManno's column. Rosie seems to delight in being provocative, & her writing style often drives me batty (especially when she tries to write about my favourite sport, figure skating -- her disdain for the sport is soooo evident in every word…) -- but today's column hit the spot, & I've boldfaced the part that raised my childless hackles. (It should probably be noted that Rosie is childfree herself... and also that I have absolutely no sympathy for drunk drivers, let alone repeat offenders.) She was observing people in a courtroom:
Into this scene of banal, almost languid foulness enters a woman jarringly at odds with her environment. Long blond hair professionally streaked – Forest Hill hair, as a class-conscious observer thinks of it – with a tight-fitted white jacket that looks suede, and designer jeans. Even fresh from lock-up she's retained an aura of posh and privilege, a lady who lunches, bizarrely exotic in these surroundings.
The Crown rattles off her charges, which include drunk driving and resisting arrest. The JP asks if she has a lawyer. Of course she has a lawyer, though unable to reach him yet. She gives his name – one of the most prominent and expensive and never-lost-a-case defence attorneys in Toronto. Clearly, she can afford him.
The young prosecutor points out that the woman is already on bail pending trial on another drunk driving charge.
The Crown will seek to have her bail revoked next day.
"You can't!" the woman interjects. "I have kids!"
As if this makes her special, different. As if all of her is special, different.
The JP inquires: Where are they now? Where were they overnight?
"With their father."
JP: "Do you understand that the Crown wants to keep you in jail until your trial on all these charges?"
The accused, indignant: "You're going to get me into a custody battle!"
An observer thinks: Maybe you don't deserve custody, lady. Maybe you're a lying, negligent, selfish bitch, the most unsavoury of all defendants who came through bail court today.
But with a Yorkville hairdresser and a Bay Street lawyer.*** *** ***
And finally, the kicker: doing the crossword puzzle on the train home tonight.
What's a six-letter word that means "parents and children"?
F-A-M-I-L-Y, of course. :(
Tuesday, January 27, 2009
Odds & ends...
I've had lots of little things flit through my head lately as "stuff I could blog about" but never enough inspiration for one grand post. So this is post is a bit of a brain-dump...!
It's been a busy (and very cold!!) couple of weeks around here. I am thoroughly sick of winter. And it's not even February yet! It was still a little bit light outside when we arrived home from work tonight & I can't tell you what a spirit-booster that was. Never mind that it was freezing cold outside, lol. A little sunshine can make the coldest day more tolerable.
FIL turned 80 last week & we went there on Saturday night to celebrate. BIL & family were there, and so was stepBIL & his wife and the new baby. He slept most of the time we were there, so it was not all about him.
Our gift to FIL (with BIL & family) was a digital picture frame, which I loaded up with about 175 digital photos I've taken over the past few years... mostly of the nephews, but some of dh & me too (why not?). I was also going through old photos of dh & me & pulling negatives to get some reprints done. I've decided to set aside the nephews' scrapbooks for the time being & work on an us/anniversary album, with the goal of having it finished in time for our 25th wedding anniversary in 2010. There will be a few pages with photos of us covering from the time we met through to our wedding, & then a spread for each year that we've been married, with photos & journalling covering the highlights.
Going through all those photos, both for the digital frame & to start the scrapbook, was a more emotional task than I thought it would be -- seeing how young we both were (not to mention skinny!!), so fresh-faced & full of hope and excitement about the future. I love scrapbooking, but I sometimes find myself getting strangely stressed about it. Part of it is because I'm a perfectionist (I've procrastinated on doing an album for Katie because, of course, THIS album HAS to be perfect!!) & I get very focused on what I'm doing -- & frustrated when the page on the table winds up looking nothing like the page I had in my head.
And of course, it can be hard to be scrapping photos of your nephews, or yourself, while all around you people are scrapping their babies. I try not to let it get to me & just enjoy the creative process, but I think it does get to me sometimes, at least on a subconscious level.
I like to think I'm a laid-back sort of person, but the truth is I have a lot of anxiety issues. I like to think I've only been that way over the past 10 years, but when I think back, I've had problems with anxiety all my life. Moving frequently, always being the new girl (not to mention the "brainy" new girl), being shy and desperately wanting to fit in will do that to you. I was never assertive enough to stand up to bullies, from the elementary schoolyard taunters to the bitchy roommates I had in grad school (I still have nightmares about that situation sometimes).
I haven't had a full-blown anxiety attack in at least seven years now (knocking wood...!), but it seems like I just get one issue or worry resolved, & something else almost immediately pops up to take its place. I find that, over the past 10 years, I've gotten hypersensitive about my health, in a way that I don't remember prior to loss & infertility. I think part of that is because pregnancy & infertility makes you hyperaware of your body & what it's doing & how you're feeling. And, of course, you become acutely aware of how fragile the human body can be & how quickly things can change and go wrong.
I think I need to get back to a yoga class. I need to practice focusing my mind & relaxing.
It's been a busy (and very cold!!) couple of weeks around here. I am thoroughly sick of winter. And it's not even February yet! It was still a little bit light outside when we arrived home from work tonight & I can't tell you what a spirit-booster that was. Never mind that it was freezing cold outside, lol. A little sunshine can make the coldest day more tolerable.
FIL turned 80 last week & we went there on Saturday night to celebrate. BIL & family were there, and so was stepBIL & his wife and the new baby. He slept most of the time we were there, so it was not all about him.
Our gift to FIL (with BIL & family) was a digital picture frame, which I loaded up with about 175 digital photos I've taken over the past few years... mostly of the nephews, but some of dh & me too (why not?). I was also going through old photos of dh & me & pulling negatives to get some reprints done. I've decided to set aside the nephews' scrapbooks for the time being & work on an us/anniversary album, with the goal of having it finished in time for our 25th wedding anniversary in 2010. There will be a few pages with photos of us covering from the time we met through to our wedding, & then a spread for each year that we've been married, with photos & journalling covering the highlights.
Going through all those photos, both for the digital frame & to start the scrapbook, was a more emotional task than I thought it would be -- seeing how young we both were (not to mention skinny!!), so fresh-faced & full of hope and excitement about the future. I love scrapbooking, but I sometimes find myself getting strangely stressed about it. Part of it is because I'm a perfectionist (I've procrastinated on doing an album for Katie because, of course, THIS album HAS to be perfect!!) & I get very focused on what I'm doing -- & frustrated when the page on the table winds up looking nothing like the page I had in my head.
And of course, it can be hard to be scrapping photos of your nephews, or yourself, while all around you people are scrapping their babies. I try not to let it get to me & just enjoy the creative process, but I think it does get to me sometimes, at least on a subconscious level.
I like to think I'm a laid-back sort of person, but the truth is I have a lot of anxiety issues. I like to think I've only been that way over the past 10 years, but when I think back, I've had problems with anxiety all my life. Moving frequently, always being the new girl (not to mention the "brainy" new girl), being shy and desperately wanting to fit in will do that to you. I was never assertive enough to stand up to bullies, from the elementary schoolyard taunters to the bitchy roommates I had in grad school (I still have nightmares about that situation sometimes).
I haven't had a full-blown anxiety attack in at least seven years now (knocking wood...!), but it seems like I just get one issue or worry resolved, & something else almost immediately pops up to take its place. I find that, over the past 10 years, I've gotten hypersensitive about my health, in a way that I don't remember prior to loss & infertility. I think part of that is because pregnancy & infertility makes you hyperaware of your body & what it's doing & how you're feeling. And, of course, you become acutely aware of how fragile the human body can be & how quickly things can change and go wrong.
I think I need to get back to a yoga class. I need to practice focusing my mind & relaxing.
Update from Montreal...
An update on a recent post:
*** *** ***
ACCIDENT
Montreal hospital to tighten measures after stillborn baby found in laundry
LES PERREAUX
January 24, 2009
MONTREAL -- A hospital adopted new rules yesterday for handling dead babies after a stillborn child was accidentally taken out with the morgue's laundry.
The Lakeshore General Hospital will conduct routine body counts and keep dead babies in bassinets instead of leaving them on stretchers after a 34-week-old stillborn was found last week at an industrial laundromat.
After the baby died Jan. 14 from undisclosed causes, the body was covered in a blue blanket and carried by a nurse to a refrigerated room.
Later that night, the hospital had several adult deaths. Another attendant delivered an adult body, also covered by a blue blanket, into the room.
He removed the cover and tossed it on the neighbouring stretcher where the covered baby lay, apparently unseen.
In need of another stretcher, hospital officials say that the attendant scooped up what appeared to be a pile of laundry on the gurney and tossed it down the laundry chute.
The baby was discovered in an industrial washing machine two days later at Buanderie Qualité, a facility about 27 kilometres from the hospital, which is located in the Montreal suburb of Pointe-Claire.
Several workers were treated for shock.
Daniel Hébert, the laundromat's co-owner, said several of his workers are women and mothers.
"It was total panic, everyone was crying, it was terrible," Mr. Hébert told reporters.
The hospital conducted an investigation over the past week and concluded the attendant made a mistake but will not face disciplinary action.
The baby's body was returned to the custody of his parents for proper disposal.
"We're not interested in assigning blame, this certainly wasn't the intention of the employee," said Suzanne Turmel, executive director of the West Island health authority.
Ms. Turmel would not say whether the family, whose identity has remained confidential, received compensation or is contemplating legal action.
"We've tried to take care of the family in this situation. They were already coping with the death of an infant, which was obviously very hard for them," Ms. Turmel said.
Nora Zaklama, the head of pathology, said baby deaths are not routine events at the Lakeshore, where six babies died last year.
*** *** ***
I don't think anybody should lose their job over this. I'm sure whoever is responsible feels wretched.
At the same time, I wouldn't blame the family if they wanted to take legal action. This review of what happened & how it can be prevented in the future was certainly a step that all hospitals need to take. Why shouldn't babies be put into bassinets anyway, like any baby would?
Six deaths in one year may not be exactly "routine" -- but it's more than enough.
Other news stories on this:
Plan B for LGH
No punishment for worker in stillborn baby incident
*** *** ***
ACCIDENT
Montreal hospital to tighten measures after stillborn baby found in laundry
LES PERREAUX
January 24, 2009
MONTREAL -- A hospital adopted new rules yesterday for handling dead babies after a stillborn child was accidentally taken out with the morgue's laundry.
The Lakeshore General Hospital will conduct routine body counts and keep dead babies in bassinets instead of leaving them on stretchers after a 34-week-old stillborn was found last week at an industrial laundromat.
After the baby died Jan. 14 from undisclosed causes, the body was covered in a blue blanket and carried by a nurse to a refrigerated room.
Later that night, the hospital had several adult deaths. Another attendant delivered an adult body, also covered by a blue blanket, into the room.
He removed the cover and tossed it on the neighbouring stretcher where the covered baby lay, apparently unseen.
In need of another stretcher, hospital officials say that the attendant scooped up what appeared to be a pile of laundry on the gurney and tossed it down the laundry chute.
The baby was discovered in an industrial washing machine two days later at Buanderie Qualité, a facility about 27 kilometres from the hospital, which is located in the Montreal suburb of Pointe-Claire.
Several workers were treated for shock.
Daniel Hébert, the laundromat's co-owner, said several of his workers are women and mothers.
"It was total panic, everyone was crying, it was terrible," Mr. Hébert told reporters.
The hospital conducted an investigation over the past week and concluded the attendant made a mistake but will not face disciplinary action.
The baby's body was returned to the custody of his parents for proper disposal.
"We're not interested in assigning blame, this certainly wasn't the intention of the employee," said Suzanne Turmel, executive director of the West Island health authority.
Ms. Turmel would not say whether the family, whose identity has remained confidential, received compensation or is contemplating legal action.
"We've tried to take care of the family in this situation. They were already coping with the death of an infant, which was obviously very hard for them," Ms. Turmel said.
Nora Zaklama, the head of pathology, said baby deaths are not routine events at the Lakeshore, where six babies died last year.
*** *** ***
I don't think anybody should lose their job over this. I'm sure whoever is responsible feels wretched.
At the same time, I wouldn't blame the family if they wanted to take legal action. This review of what happened & how it can be prevented in the future was certainly a step that all hospitals need to take. Why shouldn't babies be put into bassinets anyway, like any baby would?
Six deaths in one year may not be exactly "routine" -- but it's more than enough.
Other news stories on this:
Plan B for LGH
No punishment for worker in stillborn baby incident
Monday, January 19, 2009
Barren B*tches Book Tour: "An Exact Replica of a Figment of My Imagination" by Elizabeth McCracken
The latest selection for the Barren B*tches Book Tour (organized for our reading & blogging pleasure by the ever-energetic Mel at Stirrup Queens) is the amazing stillbirth memoir An Exact Replica of a Figment of My Imagination by Elizabeth McCracken.
I read an excerpt from McCracken’s book in O Magazine last summer & couldn’t wait to get my hands on it. I’ve read some other very good stillbirth memoirs – among them Shadow Child by Beth Powning and Life Touches Life by Lorraine Ash – as well as many “self-help” volumes, including the classic “Empty Cradle, Broken Heart” by Deborah Davis. Like reading blogs and message boards, I find that hearing other people’s stories validates my own experiences and makes me feel less alone in a world full of babies & (seemingly) effortlessly pregnant women.
McCracken’s book has its own unique voice and rhythm, and I appreciated her frank prose and wry sense of humour. I see at least part of myself in every stillbirth story, and there was lots of me in this book (although obviously much that was different too).
Each of us on the book tour reads the book, submits a question (which is added to a list distributed by Mel) & then answers at least three of them in our blog. (I can rarely limit myself to just three, though…!) Here are some of the questions with my answers.
The author expresses gratitude that she was able to easily conceive and deliver a healthy child after Pudding's death. Even Pudding's story, while distinct in its own right, is told through the lens of a grateful mother holding her happy sleeping baby in her lap. "I am not sure what sort of person I would be if that hadn't happened," she says. While it is impossible to hypothesize what might have been had some other course of events transpired, how has having other living child/ren either before or since your loss affected your grieving process? If you have not lost a child, how has your in/fertility affected how you view other people's losses? And do your views change if the grieving have other living children?
My stillborn daughter was my one and only pregnancy. I was never able to conceive another child. So obviously, I am not sure what sort of person I would have become, had I had another child.
Sometimes, I can't help but be envious of those who do achieve a subsequent pregnancy, or who have other living children. At the same time, I know enough loss moms to know that subsequent pregnancy is not a cure-all. We have several friends that we’ve made through our pregnancy loss support group who have had one or even more subsequent children. One is due any day now with her third subsequent baby -- but I know she is often upset that nobody seems to remember the little girl she lost. Everyone assumes everything is OK now – but it’s not. No amount of subsequent children will ever make up for the ones that were lost.
I have other friends from group who had other children prior to their loss. They say people would point to their other children as a source of comfort (“You still have them”), as though having other children would somehow lessen the fact that another child had died.
From their experiences, I believe that other children, whether born before or after a stillbirth, can never replace the child who died. They may bring joy to the family in their own right, but they cannot & should not be regarded as substitutes or compensation. Each child is his or her own person with his or her own place in the family, no matter how long they’re around.
After expressing some regret that she did not press for more urgent care with her midwives before Pudding's death, the author apparently comes to peace with the medical care she received, as she realizes the outcome would not have likely changed. How does your (or her) experience affect the way in which you approach your medical care or approach to pregnancy and birth, if at all?
My experience made me realize that doctors are not gods, that there are limits to what they can do, that modern medicine does not have all the answers. For the most part, I felt I received good care, although there were certainly moments (like when the admissions clerk sent us to the regular maternity ward, instead of the special care unit where they were expecting us… & insisted that we hand over our credit card to pay for a private room, even though my dr had said that’s what I’d be getting, without mentioning payment) when I wondered about the medical system.
I have also heard some real horror stories (some of them lawsuit-worthy) from our support group clients.
I did not have a subsequent pregnancy, but if I had, I am sure that I would have been in the doctor’s office every week demanding to hear the heartbeat, asking for ultrasounds, & every other form of reassurance they could give me.
On pages 79-80, McCracken speaks of losing a friend after Pudding's death. I was struck by the way she wrote this passage because it clearly expresses her feelings about the conflict and about her former friend, replacing the silence that she used to break off the friendship (I suspect the friend in question has read the book by now). Have you lost friends during or after your infertility/loss/adoption? If so, how much of the blame for the loss do you place on communication and/or miscommunication? Does your former friend know how you feel about him or her and the loss of his or her friendship?
Sadly, yes, dh & I have lost some friends along the way since loss and infertility touched our lives. The example that always springs to mind for me is our neighbour, dh’s cousin, whom I’ve written about before here. I don’t know exactly why we drifted apart the way that we did, and I’m not sure how they would describe it from their perspective (I’m sure we are partially responsible too), but from mine, it all seemed to begin following our loss, particularly as time went on & it became obvious that there would be no other babies. It’s as though we became less interesting people to them, people they were less able to relate to, without the common bond of children to tie us together.
I’ve also written about another friend:
This was my question. : ) And I totally agree with the author. Hearing & reading about people who have experienced some sort of tragedy clamouring for “closure” usually makes me shake my head. It might make you feel somewhat better to successfully sue your doctor for negligence, or see your child’s murderer brought to justice, but it won’t bring back the people you love. I think the hurt lives on, to some degree, for as long as you do.
On page 13, McCracken writes, "I want a book that acknowledges that life goes on, but that death goes on, too, that a person who is dead is a long, long story. You move on from it, but the death will never disappear from view. Your friends may say, Time heals all wounds. No, it doesn't, but eventually you'll feel better. You'll be yourself again. Your child will still be dead." Do you agree with the idea that those that have died continue on? Have you ever found that Time could actually change your perception of death? If you haven't experienced the death of a child (or even if you have), how might this translate into other areas of your life? (ie. infertility, adoption, loss of other family members, etc).
I absolutely agree with this view. My daughter continues to be an important part of my life, 10 years after her stillbirth. I very recently wrote a guest post for Glow in the Woods that addressed this topic.
Most people outside of the ALI community seem to distinguish between pregnancy loss in each trimester. When I was reading this book I kept running through my head about my miscarriage, how I felt quite similar to what Elizabeth McCraken described often enough. It still reached me, even though I lost my little one so much earlier in the pregnancy. If you have had a miscarriage, rather than a stillbirth, did this book still resonate with you? Or could you not relate at all to the loss that she experiences?
At the beginning of each meeting of the pregnancy loss support group dh & I help facilitate, we run through the “house rules” – one of which is “Every loss is significant, regardless of gestation or circumstances.”
I can remember attending a facilitators meeting at which we watched a video about miscarriage, featuring several women describing their experiences and their ongoing emotions. I was struck by how similar our feelings and our situations were. The only differences I saw were that I was able to see and hold my baby & I had more mementos than these women did.
There are definitely differences in circumstances and experiences and reactions -- but at each meeting, as parents tell their stories, I always feel there are more similarities than differences among us all. Grief is grief -- no matter how we all got to this point, we’re all feeling a lot of the same things and having a lot of the same thoughts.
Have you ever wished that someone wrote the book on the "lighter side of losing a child" (or IF, loss, insert your situation here)? Have you ever found that book? Have you found it in a blog? How have you used humor to work through times of grief?
I’ve never found that book (if you do, I’d like to hear about it!). I do sometimes find some humorous things in loss or IF blogs -- stuff that perhaps an outsider wouldn't find funny, but is to those of us inside the loop.
As we open our support group meetings, we always say, “It’s OK to cry, that’s why we brought the Kleenex.” We’ve also begun to add, “It’s OK to laugh too,” because, contrary to what people might expect to find at a grief group, we also do a lot of laughing. Sometimes the humour is pretty black, but that’s OK.
The author talks about "out-traveling sadness" on page 132. It brought to mind all of the trips we took to forget about IF and how they never worked. What are others experiences/thoughts? Does it work for anyone?
I was amazed when I tapped into an online support group shortly after my loss, to find out how many people had taken trips or vacations to “get away” afterward. One couple’s family gave them money for a vacation. Some said the vacation was just the tonic they needed. Others said it was a total waste of money, as they realized they couldn’t run away from the situation. It was still waiting for them when they got back home.
My parents came to be with us for a few weeks after our loss. My dad repainted our backyard shed & re-wallpapered our bathroom for us. As a thank you, knowing that my parents love casinos, we decided to take a short overnight road trip to a new casino that had opened recently, a short (under two hours) drive from where we live.
It was a mistake. Dh hates casinos & was in a bad mood the entire trip. I was in tears, navigating back & forth between him and my parents, putting on a happy face in front of them. We’ve never been back.
If you had gone through what Elizabeth McCracken had gone through, would you have wanted a picture? Why or why not?
I did go through stillbirth. And when the hospital social worker, who called me before I headed to the hospital, suggested that I bring a camera, I just couldn’t do it. I couldn’t even pack it, in case I changed my mind (who said I had to use it?). Taking pictures of dead babies? It seemed so morbid. What would people think?
So I, who am known on all sides of our family, as “the family photographer,” did not even pack my camera when I headed to the hospital. Fortunately, the nurses took some photos for us. Unfortunately, they were Polaroid photos, and they are horribly taken. There are six photos, and Katie is barely visible in them. There are three of us holding her, and three of her by herself. As I wrote in a recent post, she is lying on a metal tray, with only her face (barely) visible through the blankets, with a nurse’s gloved hand and a bag clearly labeled “SOILED LINEN” in the background. My support group facilitator, who taught seminars to nurses and other professionals who deal with bereaved parents, told me she’d like to use my photos as an example of how NOT to take them.
They are lousy. But they are infinitely precious, since they are the only photos that I have of our very brief time together, that confirm her existence.
One couple who came to our support group were so disappointed with the Polaroid photos that their hospital provided that they donated a digital camera to be used by other bereaved parents. They were thrilled when, some time later, another couple arrived at our group who had used the camera. They had some of the best non-professional photos that I’ve seen yet.
Thank goodness for organizations such as Now I Lay Me Down to Sleep, which are helping to add normalcy to the practice of taking photos – not to mention providing parents with stunningly beautiful keepsakes.
So this was one point where McCracken & I differ. I know she worried about making “a fetish” of a photo. Maybe it’s because my photos are so lousy, but I don’t look at them very often anymore. (But I still like knowing that they are there.) I had one (of me & dh with Katie) copied and framed, and it sits on top of our bedroom armoire, along with a few other keepsakes. I know other parents who have their child’s photo on display in the family room, along with photos of their other children. They sometimes get some “looks” from visitors, but they don’t care and I don’t think they should. It’s their house.
In my 10 years as a facilitator, I can count on the fingers of one hand the clients I can recall who, when given the opportunity to see their baby and/or take photos, have declined. (I know of many, like dh & me, who initially did not want to see the baby, but changed our minds and are very, very glad that we did.) I sometimes wonder about them, and whether they have ultimately regretted their decision.
If you had experienced a late term loss, would you have wanted to knowthe sex of the baby during any future pregnancy? Why or why not?
I knew Katie was a girl in advance, and I would definitely have wanted to know in any subsequent pregnancies. Knowing the gender, being able to give the child a name in advance and make plans for nursery décor, etc., helps make that baby more real to you, I think. Even if there is a subsequent loss, knowing is not going to make you hurt any more or less – not knowing is not going to protect you – you’re still going to hurt just as badly as you would if you know.
I do know some parents who have chosen not to know, and that’s fine too.
On page 94 Elizabeth McCracken writes, "I've never gotten over my discomfort at other people's discomfort" also "I don't even know what I would have wanted someone to say", and I am wondering how you have handled that discomfort when something terrible happened to you (suicide, miscarriage, failed cycle, etc.) Is it better for another person to say something cliche that makes you feel awful or is it better for them to ignore the topic all together?
Ignoring the topic is NEVER a good idea. The clichés can make me wince, true, but I usually try to recognize that the person meant well. Better to have at least made the effort to acknowledge my pain than pretend that nothing happened.
McCracken states that her only regret regarding Pudding, was that she didn't hold him. Would you hold your baby in the same situation?
I did see and hold my baby. I wasn’t sure I wanted to do it. Dh was opposed, and my mother (who flew in to be with us) said she’d go along with whatever we wanted (although I think she secretly wanted to see her grandchild). When the time came, I decided that I did want to see her – I felt that I would ultimately regret it if I didn’t – and dh surprised me by saying he wanted to see her too. We are so, so very glad we did. We each took turns holding her. I asked to hold her one more time before handing her back to the nurse. I said “Goodbye, baby, Mommy loves you,” kissed my fingertip & pressed it to her forehead.
That was the only skin-to-skin contact that I had with her. I didn’t unwrap her. It didn’t even occur to me that I could or should. (This is where I think some guidance & suggestions from the nursing staff would come in handy. Who knows what to do, what’s “allowed,” what’s possible, in these situations?) They handed me this little white bundle (a beautifully crocheted shawl over top of a hospital blanket, with a little white crocheted cap perched on her head), and I just stared and stared at that tiny red face. After not bringing along my camera, I think this would have to be my second-greatest regret about the whole experience.
But then, there will always be regrets. There will never be enough time, or enough photos. There will always be things we wish we had done, or done differently. Such is the nature of loss and grief.
Hop along to another stop on this blog tour by visiting the main list at Stirrup Queens (http://stirrup-queens.blogspot.com/). You can also sign up for the next book on this online book club: Never Let Me Go by Kazuo Ishiguro.
I read an excerpt from McCracken’s book in O Magazine last summer & couldn’t wait to get my hands on it. I’ve read some other very good stillbirth memoirs – among them Shadow Child by Beth Powning and Life Touches Life by Lorraine Ash – as well as many “self-help” volumes, including the classic “Empty Cradle, Broken Heart” by Deborah Davis. Like reading blogs and message boards, I find that hearing other people’s stories validates my own experiences and makes me feel less alone in a world full of babies & (seemingly) effortlessly pregnant women.
McCracken’s book has its own unique voice and rhythm, and I appreciated her frank prose and wry sense of humour. I see at least part of myself in every stillbirth story, and there was lots of me in this book (although obviously much that was different too).
Each of us on the book tour reads the book, submits a question (which is added to a list distributed by Mel) & then answers at least three of them in our blog. (I can rarely limit myself to just three, though…!) Here are some of the questions with my answers.
The author expresses gratitude that she was able to easily conceive and deliver a healthy child after Pudding's death. Even Pudding's story, while distinct in its own right, is told through the lens of a grateful mother holding her happy sleeping baby in her lap. "I am not sure what sort of person I would be if that hadn't happened," she says. While it is impossible to hypothesize what might have been had some other course of events transpired, how has having other living child/ren either before or since your loss affected your grieving process? If you have not lost a child, how has your in/fertility affected how you view other people's losses? And do your views change if the grieving have other living children?
My stillborn daughter was my one and only pregnancy. I was never able to conceive another child. So obviously, I am not sure what sort of person I would have become, had I had another child.
Sometimes, I can't help but be envious of those who do achieve a subsequent pregnancy, or who have other living children. At the same time, I know enough loss moms to know that subsequent pregnancy is not a cure-all. We have several friends that we’ve made through our pregnancy loss support group who have had one or even more subsequent children. One is due any day now with her third subsequent baby -- but I know she is often upset that nobody seems to remember the little girl she lost. Everyone assumes everything is OK now – but it’s not. No amount of subsequent children will ever make up for the ones that were lost.
I have other friends from group who had other children prior to their loss. They say people would point to their other children as a source of comfort (“You still have them”), as though having other children would somehow lessen the fact that another child had died.
From their experiences, I believe that other children, whether born before or after a stillbirth, can never replace the child who died. They may bring joy to the family in their own right, but they cannot & should not be regarded as substitutes or compensation. Each child is his or her own person with his or her own place in the family, no matter how long they’re around.
After expressing some regret that she did not press for more urgent care with her midwives before Pudding's death, the author apparently comes to peace with the medical care she received, as she realizes the outcome would not have likely changed. How does your (or her) experience affect the way in which you approach your medical care or approach to pregnancy and birth, if at all?
My experience made me realize that doctors are not gods, that there are limits to what they can do, that modern medicine does not have all the answers. For the most part, I felt I received good care, although there were certainly moments (like when the admissions clerk sent us to the regular maternity ward, instead of the special care unit where they were expecting us… & insisted that we hand over our credit card to pay for a private room, even though my dr had said that’s what I’d be getting, without mentioning payment) when I wondered about the medical system.
I have also heard some real horror stories (some of them lawsuit-worthy) from our support group clients.
I did not have a subsequent pregnancy, but if I had, I am sure that I would have been in the doctor’s office every week demanding to hear the heartbeat, asking for ultrasounds, & every other form of reassurance they could give me.
On pages 79-80, McCracken speaks of losing a friend after Pudding's death. I was struck by the way she wrote this passage because it clearly expresses her feelings about the conflict and about her former friend, replacing the silence that she used to break off the friendship (I suspect the friend in question has read the book by now). Have you lost friends during or after your infertility/loss/adoption? If so, how much of the blame for the loss do you place on communication and/or miscommunication? Does your former friend know how you feel about him or her and the loss of his or her friendship?
Sadly, yes, dh & I have lost some friends along the way since loss and infertility touched our lives. The example that always springs to mind for me is our neighbour, dh’s cousin, whom I’ve written about before here. I don’t know exactly why we drifted apart the way that we did, and I’m not sure how they would describe it from their perspective (I’m sure we are partially responsible too), but from mine, it all seemed to begin following our loss, particularly as time went on & it became obvious that there would be no other babies. It’s as though we became less interesting people to them, people they were less able to relate to, without the common bond of children to tie us together.
I’ve also written about another friend:
My favourite line of the book comes on page 103: "Closure is bullshit." In your opinion (whether or not you have experienced pregnancy loss yourself), is this true or false?Another friend & former coworker called one day. "Hey, I tried calling you at work. What are you doing at home?" "Well...I lost the baby," I said flatly. "Oh!" she said. I briefly outlined what had happened. And then she began to babble. I realize I caught her totally off guard... but one of the things she said has forever stuck in my mind as one of the dumber things anyone said to me, post-loss:
"Well, you know, Lori," she said, "you've had a pretty easy life up until now." I know I recognized right off the bat that this was a pretty odd thing to say, and I found it harder & harder to keep up my end of the conversation. After we hung up, I mulled the conversation over & over in my head. This friend hadn't had a very easy time of it in recent years -- her husband had left her, she was having difficulty dealing with a high-spirited teenaged daughter. I'd always been there to listen & encourage her.
Basically, I felt like I'd been told that I'd had a pretty cushy life (in comparison to hers), so suck it up. And was I imagining it, or did I perhaps detect a faint note of glee, that I was finally sharing some of her pain -- perhaps even gotten what I deserved?We have stayed in touch -- but needless to say, we have drifted apart & only speak to each other a handful of times during the year.
This was my question. : ) And I totally agree with the author. Hearing & reading about people who have experienced some sort of tragedy clamouring for “closure” usually makes me shake my head. It might make you feel somewhat better to successfully sue your doctor for negligence, or see your child’s murderer brought to justice, but it won’t bring back the people you love. I think the hurt lives on, to some degree, for as long as you do.
On page 13, McCracken writes, "I want a book that acknowledges that life goes on, but that death goes on, too, that a person who is dead is a long, long story. You move on from it, but the death will never disappear from view. Your friends may say, Time heals all wounds. No, it doesn't, but eventually you'll feel better. You'll be yourself again. Your child will still be dead." Do you agree with the idea that those that have died continue on? Have you ever found that Time could actually change your perception of death? If you haven't experienced the death of a child (or even if you have), how might this translate into other areas of your life? (ie. infertility, adoption, loss of other family members, etc).
I absolutely agree with this view. My daughter continues to be an important part of my life, 10 years after her stillbirth. I very recently wrote a guest post for Glow in the Woods that addressed this topic.
Most people outside of the ALI community seem to distinguish between pregnancy loss in each trimester. When I was reading this book I kept running through my head about my miscarriage, how I felt quite similar to what Elizabeth McCraken described often enough. It still reached me, even though I lost my little one so much earlier in the pregnancy. If you have had a miscarriage, rather than a stillbirth, did this book still resonate with you? Or could you not relate at all to the loss that she experiences?
At the beginning of each meeting of the pregnancy loss support group dh & I help facilitate, we run through the “house rules” – one of which is “Every loss is significant, regardless of gestation or circumstances.”
I can remember attending a facilitators meeting at which we watched a video about miscarriage, featuring several women describing their experiences and their ongoing emotions. I was struck by how similar our feelings and our situations were. The only differences I saw were that I was able to see and hold my baby & I had more mementos than these women did.
There are definitely differences in circumstances and experiences and reactions -- but at each meeting, as parents tell their stories, I always feel there are more similarities than differences among us all. Grief is grief -- no matter how we all got to this point, we’re all feeling a lot of the same things and having a lot of the same thoughts.
Have you ever wished that someone wrote the book on the "lighter side of losing a child" (or IF, loss, insert your situation here)? Have you ever found that book? Have you found it in a blog? How have you used humor to work through times of grief?
I’ve never found that book (if you do, I’d like to hear about it!). I do sometimes find some humorous things in loss or IF blogs -- stuff that perhaps an outsider wouldn't find funny, but is to those of us inside the loop.
As we open our support group meetings, we always say, “It’s OK to cry, that’s why we brought the Kleenex.” We’ve also begun to add, “It’s OK to laugh too,” because, contrary to what people might expect to find at a grief group, we also do a lot of laughing. Sometimes the humour is pretty black, but that’s OK.
The author talks about "out-traveling sadness" on page 132. It brought to mind all of the trips we took to forget about IF and how they never worked. What are others experiences/thoughts? Does it work for anyone?
I was amazed when I tapped into an online support group shortly after my loss, to find out how many people had taken trips or vacations to “get away” afterward. One couple’s family gave them money for a vacation. Some said the vacation was just the tonic they needed. Others said it was a total waste of money, as they realized they couldn’t run away from the situation. It was still waiting for them when they got back home.
My parents came to be with us for a few weeks after our loss. My dad repainted our backyard shed & re-wallpapered our bathroom for us. As a thank you, knowing that my parents love casinos, we decided to take a short overnight road trip to a new casino that had opened recently, a short (under two hours) drive from where we live.
It was a mistake. Dh hates casinos & was in a bad mood the entire trip. I was in tears, navigating back & forth between him and my parents, putting on a happy face in front of them. We’ve never been back.
If you had gone through what Elizabeth McCracken had gone through, would you have wanted a picture? Why or why not?
I did go through stillbirth. And when the hospital social worker, who called me before I headed to the hospital, suggested that I bring a camera, I just couldn’t do it. I couldn’t even pack it, in case I changed my mind (who said I had to use it?). Taking pictures of dead babies? It seemed so morbid. What would people think?
So I, who am known on all sides of our family, as “the family photographer,” did not even pack my camera when I headed to the hospital. Fortunately, the nurses took some photos for us. Unfortunately, they were Polaroid photos, and they are horribly taken. There are six photos, and Katie is barely visible in them. There are three of us holding her, and three of her by herself. As I wrote in a recent post, she is lying on a metal tray, with only her face (barely) visible through the blankets, with a nurse’s gloved hand and a bag clearly labeled “SOILED LINEN” in the background. My support group facilitator, who taught seminars to nurses and other professionals who deal with bereaved parents, told me she’d like to use my photos as an example of how NOT to take them.
They are lousy. But they are infinitely precious, since they are the only photos that I have of our very brief time together, that confirm her existence.
One couple who came to our support group were so disappointed with the Polaroid photos that their hospital provided that they donated a digital camera to be used by other bereaved parents. They were thrilled when, some time later, another couple arrived at our group who had used the camera. They had some of the best non-professional photos that I’ve seen yet.
Thank goodness for organizations such as Now I Lay Me Down to Sleep, which are helping to add normalcy to the practice of taking photos – not to mention providing parents with stunningly beautiful keepsakes.
So this was one point where McCracken & I differ. I know she worried about making “a fetish” of a photo. Maybe it’s because my photos are so lousy, but I don’t look at them very often anymore. (But I still like knowing that they are there.) I had one (of me & dh with Katie) copied and framed, and it sits on top of our bedroom armoire, along with a few other keepsakes. I know other parents who have their child’s photo on display in the family room, along with photos of their other children. They sometimes get some “looks” from visitors, but they don’t care and I don’t think they should. It’s their house.
In my 10 years as a facilitator, I can count on the fingers of one hand the clients I can recall who, when given the opportunity to see their baby and/or take photos, have declined. (I know of many, like dh & me, who initially did not want to see the baby, but changed our minds and are very, very glad that we did.) I sometimes wonder about them, and whether they have ultimately regretted their decision.
If you had experienced a late term loss, would you have wanted to knowthe sex of the baby during any future pregnancy? Why or why not?
I knew Katie was a girl in advance, and I would definitely have wanted to know in any subsequent pregnancies. Knowing the gender, being able to give the child a name in advance and make plans for nursery décor, etc., helps make that baby more real to you, I think. Even if there is a subsequent loss, knowing is not going to make you hurt any more or less – not knowing is not going to protect you – you’re still going to hurt just as badly as you would if you know.
I do know some parents who have chosen not to know, and that’s fine too.
On page 94 Elizabeth McCracken writes, "I've never gotten over my discomfort at other people's discomfort" also "I don't even know what I would have wanted someone to say", and I am wondering how you have handled that discomfort when something terrible happened to you (suicide, miscarriage, failed cycle, etc.) Is it better for another person to say something cliche that makes you feel awful or is it better for them to ignore the topic all together?
Ignoring the topic is NEVER a good idea. The clichés can make me wince, true, but I usually try to recognize that the person meant well. Better to have at least made the effort to acknowledge my pain than pretend that nothing happened.
McCracken states that her only regret regarding Pudding, was that she didn't hold him. Would you hold your baby in the same situation?
I did see and hold my baby. I wasn’t sure I wanted to do it. Dh was opposed, and my mother (who flew in to be with us) said she’d go along with whatever we wanted (although I think she secretly wanted to see her grandchild). When the time came, I decided that I did want to see her – I felt that I would ultimately regret it if I didn’t – and dh surprised me by saying he wanted to see her too. We are so, so very glad we did. We each took turns holding her. I asked to hold her one more time before handing her back to the nurse. I said “Goodbye, baby, Mommy loves you,” kissed my fingertip & pressed it to her forehead.
That was the only skin-to-skin contact that I had with her. I didn’t unwrap her. It didn’t even occur to me that I could or should. (This is where I think some guidance & suggestions from the nursing staff would come in handy. Who knows what to do, what’s “allowed,” what’s possible, in these situations?) They handed me this little white bundle (a beautifully crocheted shawl over top of a hospital blanket, with a little white crocheted cap perched on her head), and I just stared and stared at that tiny red face. After not bringing along my camera, I think this would have to be my second-greatest regret about the whole experience.
But then, there will always be regrets. There will never be enough time, or enough photos. There will always be things we wish we had done, or done differently. Such is the nature of loss and grief.
Hop along to another stop on this blog tour by visiting the main list at Stirrup Queens (http://stirrup-queens.blogspot.com/). You can also sign up for the next book on this online book club: Never Let Me Go by Kazuo Ishiguro.
Sunday, January 18, 2009
Not again...
The body of a stillborn baby was found among hospital laundry in Montreal on Friday. This story from Canadian Press appeared in today's Toronto Star:
This is far from the first such story I have heard in the past 10 years since Katie's stillbirth, and I'm sure it won't be the last, at least until hospitals adopt uniform protocols to follow in dealing with stillbirth (and perhaps not even then). And each time I hear of such a case, I find myself shuddering & think, "There but for the grace of God go I & my baby."
The first such case I heard of came within about a month of Katie's stillbirth, at a city hospital (NOT the one I had delivered at, thankfully). I read about the case and shuddered.
Thinking that taking photos of a dead baby would be "too morbid," I had not brought my camera with me to the hospital (my one biggest regret). Thankfully, the nurses took six Polaroids for us. They are lousy photos in almost every respect, but they are among my most treasured possessions, because they are the only ones that exist, that attest to the fact that, yes, there was a baby, and yes, we were (and still are) parents.
There is one of me holding Katie (not visible); one of me & dh with Katie (not visible); and one of me, dh, Mom & Katie (also not visible). And three of Katie herself. (My support group facilitator, who helped train nurses and other professionals who assist bereaved parents, told me she'd like to use my photos as an example of how NOT to take them.) Bundled up just as we had seen her, only her tiny red face is visible (and not very clearly at that). She is lying on a metal tray, held by the nurse's gloved hand. There is a bag in the background clearly labelled "SOILED LINEN."
I guess you can understand why hearing stories about stillborn babies' bodies found among the hospital linen hits pretty close to home for me.
Baby's body found in a Montreal laundromat
Jan 17, 2009 12:48 PM
The Canadian PressMONTREAL–The body of a baby stillborn at a hospital in Montreal has been
found in an industrial laundromat in the city's east end.The employees of the Buanderie Qualite laundromat, located on Fullum Street, made the discovery on Friday, as they processed the laundry from the Lakeshore General Hospital in Pointe Claire.
Louis-Pascal Cyr, a spokesman for the Lakeshore General Hospital, told reporters Saturday that an internal investigation has been launched into the incident.
Cyr says the evidence suggests that something "was not done properly" and that everything points to human error.
According to media reports the baby's family has been notified about the incident.
The laundromat employees who found the baby were reportedly treated for shock.
This is far from the first such story I have heard in the past 10 years since Katie's stillbirth, and I'm sure it won't be the last, at least until hospitals adopt uniform protocols to follow in dealing with stillbirth (and perhaps not even then). And each time I hear of such a case, I find myself shuddering & think, "There but for the grace of God go I & my baby."
The first such case I heard of came within about a month of Katie's stillbirth, at a city hospital (NOT the one I had delivered at, thankfully). I read about the case and shuddered.
Thinking that taking photos of a dead baby would be "too morbid," I had not brought my camera with me to the hospital (my one biggest regret). Thankfully, the nurses took six Polaroids for us. They are lousy photos in almost every respect, but they are among my most treasured possessions, because they are the only ones that exist, that attest to the fact that, yes, there was a baby, and yes, we were (and still are) parents.
There is one of me holding Katie (not visible); one of me & dh with Katie (not visible); and one of me, dh, Mom & Katie (also not visible). And three of Katie herself. (My support group facilitator, who helped train nurses and other professionals who assist bereaved parents, told me she'd like to use my photos as an example of how NOT to take them.) Bundled up just as we had seen her, only her tiny red face is visible (and not very clearly at that). She is lying on a metal tray, held by the nurse's gloved hand. There is a bag in the background clearly labelled "SOILED LINEN."
I guess you can understand why hearing stories about stillborn babies' bodies found among the hospital linen hits pretty close to home for me.
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